Hi there,
There’s a big debate in an epilepsy support group on FB about these terms: seizure disorder, Epilepsy and neurological disorder. Is epilepsy a symptom of a neurological disorder? What do you think the definitions of these are and why? I do know that different countries have different definitions. I have my own idea but I’m curious to see what everyone else thinks.🙂
It’s a sad place when people are not willing to understand and believe whatever they want covid is real not fake x x
What causes epilepsy
Almost anything that’s the hard part like car accidents or a bad birth
When I tell someone new that I have epilepsy and very unreliable memory recall (as a result of the cumulative side effects of all of the anticonvulsants and some other meds), I try to educate them about not only the range of seizures that I have but also how to react and what to do (and not to do) when witnessing someone having a seizure.
A lot of times when I do tell someone I will get either “you don’t look like you do” or “do you have it all the time?”
When I was young, I was diagnosed with petite mal based on eeg and symptoms. But in my mid teens, my diagnosis was changed to temporal lobe, again based in a different eeg and symptoms. Has this happened to anyone else? And if anyone has an answer as to why this happened, I would love to hear about it!
I wasn't told outright but for years my paperwork listed mine as "drug resistant" generalized epilepsy
I have been referred for some testing because of the ways the pattern and severity has changed… read more
In 1969, I was diagnosed with petit mal, grand mail and psychomotor seizures. In the 90’s after the MRI tge diagnosis became complex partial seizure disorder.
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
1959 is when I was diagnosed at age 7.
I certainly did not know this until a few minutes ago --when I was researching what international medical committee decides why the label of "mental illness" is used rather than "mental disability" for those that are not labeled as mental disorders (and I did not even know that the mental disorders were not listed as a sub-group of the overall group known as mental illness rather than being in a separate category.
https://www.ncbi.nlm.nih.gov/books/NBK20369/
Did any of you know about this… read more
Many factors add to epilepsy. Continue researching. Be your own best advocate! I am proud of the strength we find to help ourselves! Looking forward to spending time with my Neurophychologist! He will… read more
When I first started reading, I was angry b/c I thought the article was going to say that everyone has brain fog and memory problems, so it would minimize what we go through. But then I saw it as an opportunity to help others understand what we go through, COVID or not, as it focuses on the brain and cognitive impairment.
https://www.theguardian.com/lifeandstyle/2021/a...(Phone number can only be seen by MyEpilepsyTeam users)
You'll do great
Enough of this Blue team vs Red team bull! We have to get back to the USA that only has the Red, White and Blue team that has members who are capable of civil debate and compromise to solve the problems.
Trump may possibly be the worst president in US History, but the analysis of this will not come until 10 years from now by a group of experts that are not emotionally connected to the moment and analyze all of the facts regarding the current situation and comparing them of other times in US… read more
Again its a freedom of speech bye.
Hi my name is kimmie. I am 45. The only one in my family with epilepsy is my cousin. I didn't have any problems until few years ago. When i was 22 i was in a Motorcycle wreck with no helmet. My head is what broke my fall doing 60. We hit a northern deer. I have memory problems till this day. About 4 years ago my long term boyfriend of 17 years cheated on me. I was so stressed out from the mean things he said and did that i started to blackout and fall to the gound and would and Contort while i… read more
There different ways of triggering a seizure
Alcohol triggers it
Resistance of medication ( meds not working 100% )
Not taking meds or following schedule
Lack of sleep
Stress/ anxiety/ depression/… read more