Hi
My epilepsy medication doesn't seem to be working and when I change. Well things either stay the same or get worse. I suffered from tonic clonic seizures but got that controlled and they are fine om my current medication. However I am also suffering from partial complex seizures but can't get them controlled. My consultant wants me to stay on my current medication of 1200 Zebinix 600mg Epilim 3 times a day and 50mg morning and 75mg evening of Lamotrogine for the next couple of months and if… read more
I no longer have these, but it used to be a common occurrence. I know there are many, many types of seizures but have never found one that fits what used to happen to me. Can anyone tell me what this is??
* It lasted an entire day. From the time I woke up until I went to bed at night. Usually about 13-16 hours. Was always fine the next day
* I was always conscious.
* Never extra tired.
* No twitches. No pain or even physical discomfort of any kind.
* Most people didn't know anything… read more
I wonder if it might be medication related? You don’t mention whether or not you are on any medication, so a review could be needed.
Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I Was on Topomax and it had some side effects that were tolerable … Stay strong in time you might be thankful 🙏 🙏
I have Refractory epilepsy, idiopathic generalized epliepsy. I have tried 3 different medication and it just seems to make my seizures and quality of life worst. I am having 3-5 tonic clonic seizures a day yesterday was my first seizures free day in awhile.
Love you have help💕
Just trying to she what all forms of epilepsy is out there
These are the Focal type seizures
My epilepsy used to be symptomatic (although the docs could not find anything that caused it), then it became cryptogenic - for a long time, it's currently either symptomatic or idiopathic depending on the doctor.
I have multi-focal seizures that can become generalized with a few other unpleasant things to add to the mixture. My epilepsy started when I was 13 for no particular reason and as I'm now 40, it's unlikely to go away.
NEVER HEARD OF THEM
Hi my name is Michelle and I suffer from grand mol seizures it is normal to not remember how it happened or just simple things
there is many ways to get a seizure... partial (focal onset) and generilized seizures. partials means 1/2 of your brain is haveing a seizure. generilised mean both side of the brain are haveing a… read more
My 3 1/2 year old so was recently diagnosed with idiopathic generalised epilepsy and likely to start Keppra soon. Does anyone have any good resources about talking about epilepsy and taking medication for this age group. Many thanks
I would start looking into short stories for kids and comics .
Story Books ……
Lee the Rabbit with Epilepsy
Dottie the Dalmatian has Epilepsy
Living with Seizures
Because You are My Best Friend
… read more
So I thought after having this for 25 years and not really looking that much into it for so long I thought while I've got so much time and since it's the reason I'm not working I should probably look into it.
So after digging through a lot of old paperwork and files this is what I found out:
In basic terms, there’s Mesial temporal sclerosis damage to the right side Hippocampus there's also damage to the right dorsal thalamus. There is also white matter damage (ex-vacuo dilatation of the… read more
Wow, that's some amount of research but I think it's important to know all you can about your condition, as I've said, I don't think ignorance is bliss - when you know about it you can discuss it with… read more
My daughter has been diagnosed with Jeavons Syndrome. We are waiting to see the neurologist and I can find hardly any information on this rare type of epilepsy.
@A MyEpilepsyTeam Member
What is :
"Mad diet"?