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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Know If Your Making The Right Decisions With Your Medical Care?

A MyEpilepsyTeam Member asked a question πŸ’­
Sydney, AU

Cutting the long story short I was told by my gynecologist I would definitely need surgery to remove an endometriosis nodule in my rectum but upon a consultation today with a colorectal surgeon she advised that i dont need surgery just treatment to suppress the endrometriosis with hormones and that the surgery decesion relies heavily on the gynecologist requesting it and that she has to arrange the surgery on her end.

The thing is my gynecologist wants me to have the surgery but I really don't… read more

November 26, 2021
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A MyEpilepsyTeam Member

Hi Nada--I have made terrible decisions in the past when mis-diagnosed by the medical society and the providers leaving paying exhorbitant bills. I think a second opinion might be a good thing for you?

November 30, 2021
A MyEpilepsyTeam Member

I totally agree John. I have quit going to neurologists for now. We have to take charge and modify our meds according to our own response both physically and emotionally. I have blood draws semi-annually to make sure my keppra XR is at the therapeutic level. It's been successful except for an over sedation by our local hospital seven months back.

November 29, 2021
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member This is why the final decision is yours (the patient). You can have the professional advice of your doctors, seek other professional advice from other doctors, and seek the advice from family and friends especially from those who have had a similar decision to make. However, you are the one who has to live with the results of what is done.

On December 1st, when I next meet with my neurologist, I am going to hear the recommendations (long and short terms) from the Brigham and Women's Hospital committee of the entire neurology department and other doctors whose input is important to determining the best plan, but regardless of all of the experts recommend, the final decision about what is done is mine alone.

November 27, 2021
A MyEpilepsyTeam Member

My daughter in law has had a few ops for endometriosis The tissue they remove d was fine but what was left has attached to her bladder They'd given her the option of a hysterectomy which she declined, they have 2 small children ,maybe she didn't want one as the recovery time would impact on the care of the little ones ,I don't know.(I did have a uterine ablation ,where they remove the lining of the womb,about 10 years ago I wish I'd had it done earlier No more heavy periods ) I think they're monitoring the situation Good luck with your decision ,it's your body after all x

November 27, 2021
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member why was your gallbladder removed? Doctors can get it wrong my gp thought my severe chest pain was because i had a gallbladder attack/ stones he sent me for a ultrasound and gave me medication for it but I knew he was wrong didn't take the medications scans came out clear .

December 5, 2021

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