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Has Anyone Else Been Diagnosed W/ Mild Diffuse Encephalopathy? What Is It?

Has Anyone Else Been Diagnosed W/ Mild Diffuse Encephalopathy? What Is It?

I haven’t seen my neurologist since getting this diagnosis added to my ever increasing list of epilepsy complications. Showed up after my recent inpatient video EEG (6 of them) 4 in ICU. I’m 51. Am I now having dementia??!?!

A MyEpilepsyTeam Member said:

Long and short answer on my part...you haven't seen your neurologist in quite a while I'm guessing, which would explain why so many things had been shown/taken and you are showing better or worse results than your previous visit. When it comes to Dementia, it would most likely be obtained genetically or through EXTREME head trauma or damage to your spine, affecting the Hypothalamus (very center of the brain) and you would be told by your doctor or neurologist ASAP. I recommend visiting a chiropractor in this case just to make you feel at ease and it really helps when they pop certain parts of your body into place (especially your spine) and feels good. Better blood flow to the brain. BTW, sorry this answer was so long...

posted 7 months ago
A MyEpilepsyTeam Member said:

I do not know

posted 6 months ago
A MyEpilepsyTeam Member said:

My reading indicates that there are other forms of treatment for intractable seizures that are not responding adequately to medication.

Perhaps you should start a written list of questions/concerns so that you can have them addressed at your next appointment. It might be helpful to have someone with you. ( I know that I can get overwhelmed by too much information and the emotions of considering medical information/diagnoses/treatment options.)

Also, I wonder if you could call ahead of your appointment, let them know that you have new medical concerns and questions and would like a longer time slot. I do not know anything about encephalopathy and would also have many questions and would want time for discussion without time pressure.

posted 6 months ago
A MyEpilepsyTeam Member said:

TY

posted 7 months ago
A MyEpilepsyTeam Member said:

I have lamotrifine for 100m in morning and around 8-9pm

posted 7 months ago
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