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Has Anyone Else Been Diagnosed W/ Mild Diffuse Encephalopathy? What Is It?
I haven’t seen my neurologist since getting this diagnosis added to my ever increasing list of epilepsy complications. Showed up after my recent inpatient video EEG (6 of them) 4 in ICU. I’m 51. Am I now having dementia??!?!
I do not know
My reading indicates that there are other forms of treatment for intractable seizures that are not responding adequately to medication.
Perhaps you should start a written list of questions/concerns so that you can have them addressed at your next appointment. It might be helpful to have someone with you. ( I know that I can get overwhelmed by too much information and the emotions of considering medical information/diagnoses/treatment options.)
Also, I wonder if you could call ahead of your appointment, let them know that you have new medical concerns and questions and would like a longer time slot. I do not know anything about encephalopathy and would also have many questions and would want time for discussion without time pressure.
TY
I have lamotrifine for 100m in morning and around 8-9pm
No its not
Does Anyone Else Suddenly Stop Recognizing Where They Are, Or Why They’re There?
Concussion, Seizures, Coma, Bells Palsey. Have Auto Immune Brain Encephalopathy. Take Keppra. Terrified I Am Going To Have A Seizure.
Looking For Anyiwho Has Been Diagnosed With Severe Encephalopathy Metabolic Degenerative Disease. They Found It On My Sleep Deprived Study
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