Has Anyone Else Been Diagnosed W/ Mild Diffuse Encephalopathy? What Is It? | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Has Anyone Else Been Diagnosed W/ Mild Diffuse Encephalopathy? What Is It?
A MyEpilepsyTeam Member asked a question 💭

I haven’t seen my neurologist since getting this diagnosis added to my ever increasing list of epilepsy complications. Showed up after my recent inpatient video EEG (6 of them) 4 in ICU. I’m 51. Am I now having dementia??!?!

posted November 3, 2021
View reactions
A MyEpilepsyTeam Member

I do not know

posted November 27, 2021
A MyEpilepsyTeam Member

My reading indicates that there are other forms of treatment for intractable seizures that are not responding adequately to medication.

Perhaps you should start a written list of questions/concerns so that you can have them addressed at your next appointment. It might be helpful to have someone with you. ( I know that I can get overwhelmed by too much information and the emotions of considering medical information/diagnoses/treatment options.)

Also, I wonder if you could call ahead of your appointment, let them know that you have new medical concerns and questions and would like a longer time slot. I do not know anything about encephalopathy and would also have many questions and would want time for discussion without time pressure.

posted November 26, 2021
A MyEpilepsyTeam Member

TY

posted November 7, 2021
A MyEpilepsyTeam Member

I have lamotrifine for 100m in morning and around 8-9pm

posted November 7, 2021
A MyEpilepsyTeam Member

No its not

posted November 4, 2021

Related content

View All
Does Anyone Else Suddenly Stop Recognizing Where They Are, Or Why They’re There?
A MyEpilepsyTeam Member asked a question 💭
What Dog Breeds Or Cat Breed Are Good For Epilepsy
A MyEpilepsyTeam Member asked a question 💭
Has Anyone Tried Cefaly?
A MyEpilepsyTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in