I have partials with impaired awareness I take my glasses off at night and may be see a black spot on the ceiling,I automatically it must be a spider My stupid brain doesnt tell me to put my glasses on to check When I'm I'll my brain plays tricks ,I hear a noise in the bedroom & think it's a spider .One night I was convinced it was mice scratching /running in the loft It was a magpie messing around in the gutters These aren't auras though I do recall seeing 'hallucinations'being mentioned on a patient info leaflet as a possible side effect of that med I was on PS I hate splders too

@A MyEpilepsyTeam Member There can be a difference in when your Epilepsy/Seizure Disorder starts and when it is officially diagnosed. What type of seizures were you diagnosed as having when you were officially diagnosed?

I ask because hallucinations are in the category of Complex Partial Seizures (or whatever they renamed it). I had all kinds of them long before I was officially diagnosed. Of course, I experienced my first aura/seizure back in the summer of 1980 and was not officially diagnosed until 1997. And this only happened because a therapist at the walk in clinic at UMASS Dartmouth had me listing all of my experiences and at the same time he was looking through medical books. He was the one who diagnosed me with Complex Partial Seizures. My first neurologist told me that it is not important what they are but rather treating them to help me to reach a seizure free state.

And during my 14 years working at Massachusetts General Hospital Treadwell Library, I had access to all of the books and journals that the doctors do and learned quite a bit about Epilepsy/Seizure Disorders. Unfortunately, I can only recall a portion of it when I need it. One fact that has never gone away was the fact that I read about seizures can mutate and increase in form and the same with the auras that accompany them. Not to mention the fact auras are not restricted in location in the brain.

I was experiencing the hallucinations (Complex Partial Seizures) early on along with the fainting spells (Full Seizures), unfortunately for me most of them were and all are now absence seizures, thus I require witnesses to fill in the details. And, if I have no witness (like the potential nocturnal seizures), then I have no concrete proof that I am having them.

So those "hallucinations" might actually have been your first experience with seizures. How long after you started having those was it before you had your first seizure that led you to going to a neurologist and eventually being diagnosed?

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A MyEpile...

I myself have three tips of seizures. Grandma, Pitma , and the Spook Seizures. They make me a Cadagory 1 Epileptic. I have gone through the Gama Knife study. Got the VNS in me also. Neather worked on stopping my seizure counts. All I can say is that I need my alternative med to reduce the numbers of seizure counts per month. ( Mary Jane.) It has happened me out for years. I have never hid it. Even though it's still isn't leagel here in Idaho. Even though it does help me out a lot. I have lety Neurologist know all about it.

i had many head injurys really but nothing showed up as a disorder or a defect untill i was about 15yrs old and got the monthly curse thats when it started i froze like a broad and fell like i was dead and i was told i stayed that way for awhile i start falling like that 7 to 8 times every day even once i was see a nero doc but over time they finally got a set 4 drugs just for my seizures and 4 more for the other health problems...

In February of last year I experienced my first seizure I haven't been properly diagnosed as I've still getting tests done , my neurologist couldn't give me a diagnosis and I felt he was just guessing when he told me I had FND because I know it's not that it was my GP who said I had Epilepsy after witnessing me having a seizure and gave me tegretol and even with that I'm not totally convinced .
I'M just remembering what werid things I have experienced prior to these seizures happening ,I've even had auditory hallucinations where I hear peoples voices that I don't know I remember waking up to hearing a man screaming in my ear it was frightening and just a few months ago I've woken up to hearing a women say something to me there's other things aswell I've seen a ghost , had visual premonitions if that's what it's called I've even seen a spirit attached to a person I always wondered why these things happened to me but with these seizures that have began happening I'm starting to understand that my brain isn't quite normal.