I am still told how many new messages there are each day, but I only have access in the list of a portion of those new messages. For example, right now it indicates that I have 11 more notifications, but there are not any in the new messages box for me to click on. This started a few weeks ago. And I have already contacted the managers of the site (and I was not the first to tell them) and their techs are working on the problem.

As I have discussed with some of you, I try to send a greeting and add all new members to my team to help to get answers for them. However, there are a lot more of you have personal experience with implants like VNS, RNS, etc. and various brain surgeries, versions of the Keto diet, use of other alternative treatments and anticonvulsants and the like that I do not personally have.

How can we improve things for them even while we consider the meetings and the likes for some of us?

The… read more

Im not having a great time with my epilespsy. Not enjoying it at all. Feeing very low and and in fear… anxious too.
I cqn go on and on about iit all day all…

Hi, this forum is very important and helpful for those suffering and needing advice. Recently I have noticed people abusing the forum and treating it as a dating site - giving out private email addresses and phone numbers to those that are vulnerable. Please don't abuse the site in this way (I'm not mentioning names but you know who you are).Thank you.

My wife is living with epilepsy and I am so scared to death of losing her. I would like to know if there is anything we could do, or is it something that's inevitable?

I had to give up music and performing since there were no active bands in the area and I used to play at church, but no longer identify with any religion
I used to work at open houses as a seasonal gig but the whole no driving thing has made it difficult and they wouldn't hire me back when I lost my drivers license. They won't hire me as a weekend leasing specialist or receptionist when they find out I have epilepsy since I'm there by myself so I've stopped applying
I'm into fitness and look… read more

I ask this because the site owners and techs are not able to provide an additional search option to search for New Members. And there have been too many New Members over the years who have come once or a few times and gotten frustrated and left because they do not get the true benefit of being embraced by a large enough team to not only make them feel welcome but also be able to provide answers and often personal experience regarding any related to seizures (types, symptoms, auras, side… read more

My pancreas stopped working. I take Vimpat Phenobarbital Felbamate and Diamox.

Please tell me that I am not the only one urging them to tell everyone with Epilepsy/Seizure Disorder about this amazing site.

It has changed my life to come here and make friends who know exactly what it is like to have a seizure. Don't you want everyone to also receive this gift?