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Random Uncontrollable Hunger
A MyEpilepsyTeam Member asked a question 💭

Has anyone experienced random uncontrollable hunger when taking tegretol, I've had my dose increased and I'm not sure if the hunger is hormone/stress related or due to a higher dose of medication.
I mean eating like a ravenous pig once a week isn't normal for me but it was before and now after my periods I'm just hoping it's just hormones related and this isn't going to be a regular thing for me.

posted July 5, 2021
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A MyEpilepsyTeam Member

No not me and I been on brand tegretal and brand Lamictol 25 yrs

posted July 8, 2021
A MyEpilepsyTeam Member

I always learned more from my pharmacist. If the doctor made any type of changes, the pharmacist always told me what side effects could occur.

posted October 30, 2023
A MyEpilepsyTeam Member

I’ve been taking Tegretol brand for 26 years and my appetite is no different than before. I used to not take it, so it must not be affecting my hungry Ness.

posted September 30, 2023
A MyEpilepsyTeam Member

Nada, don't dismiss it completely. Not all of us get all of the side effects of a medication and some of us have an uncommon reaction to a medication. Years ago, I shared all of the known side effects of a medication, and he was experiencing a very rare but potentially deadly reaction to the medicine. I shared the link with him and told him to contact his neurologist immediately.

The following list contains all of the known side effects of Tegretol and its generics: https://www.drugs.com/sfx/tegretol-side-effects...

Rapid weight gain (but not binge eating) is listed as a rare side effect of Tegretol. However, binge eating is a common sign of someone in depression.

Also, you might want to talk with your pharmacist because they have access to the same databases as the doctors regarding side effects of medications or the interactions of one or more medications with a new medication added. I don't have access to that level of information. Thus, I talk with my pharmacist when I get new medications. However after getting to know me and my medical conditions, I don't even need to ask him because he is bringing them to my attention when he sees the new medication. However, I have lived in a little town for 20+ years. It was different when I was living in a small city (about 100,000 residents) for the first 37 years of my life.

NOTE: It is also important to understand that most doctors only know the most dangerous common side effects. They do not know all of the possible side effects of the medications.

posted September 30, 2023
A MyEpilepsyTeam Member

I won't blame the medication just yet cause it's still early days and I haven't gain a significant amount of weight to be concerned about I think it's hormonal/stress aswell.
I connected the recent increase of my medication dose to the timing of the month and it's just unfortunate that I got confused on which could be causing the increase of appetite.
If it happens again I will try to find an natural appetite suppressant like tea to help but I'm hoping that with my operation coming up to remove an ovarian cyst that these seizures will go away wishful thinking I know.

posted July 6, 2021

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