It doesn't matter how much I try paying attention to the conversation. I couldn't tell you everything word for word even if it's just happened. It's like it goes in one ear and out the other. Like following instructions if I've been given 3/4 things to do if I've not written down I would be able to remember 3 & 4 but not 1 & 2
@A MyEpilepsyTeam Member I am sorry to hear that your family reacts that way. However, you have friends on here, and we can reassure you that you are normal. Epilepsy/Seizure Disorder doesn't make you abnormal, so never listen to anyone who tells you otherwise. In most cases, it is because these people do not understand and too many will not even listen when you are trying to explain it to them.
I have a terrible trouble with memory. I've always had a bad memory with Epilepsy but these last lot of seizures has made it a lot worse balance and have to hold my husband's arm when going out also writing & spelling and I'm frustrated that my spelling has gone as I used to be a good speller.. Writing has been sloping all do with the last lot of seizures. I've just done s fundraiser for. Uk Epilepsy.
Don't let anyone imply your stupid it's just ignorance on there part.
This is so relatable. It's so upsetting as well. For creatives like myself who randomly will get an awesome idea for an art piece. Then I find my journal and the idea is gone. No matter how hard I try to remember it.
I don't think people understand how our memory is severely impacted by the meds, and seizures themselves. Unless it's a partner, very close best friend who has witnessed and truly loves you, and parents.
Hopefully the stigma will improve and won't affect us getting jobs, doing housework, etc.
I've been on many medications and found the more they put me on, the more it affects my memory loss. If I don't have a notepad and pen or diary to write things down, I forget. Don't be worried about asking questions or asking people to repeat themselves. They must understand you are on medication and these all affect us differently.