Hello everyone I am a new member and would like to connect with more people who can relate to my neurological condition. I am located in Dallas, TX and if any others are interested don't hesitate to comment or message. I look forward to hearing from some of you all. And Happy Holidays!😇

This happened to me for the first time that I'm aware of today. Usually my eyes are either closed or roll back and I shake uncontrollably any insight would be helpful.

Because my dad told me I was at the top of the stairs talking to myself but what I was saying was worded like having a conversation with myself

I have both grand mal seizures and partial (small/absent) seizures. But i more often have the partial seizure, and as my diagnosis is fairly new, and i only devloped epilepsy within the past 2 years. Usually when i have a partial/absent seizure it lasts less than a minute, my stomach drops, i kinda go into a deep stare/daze, my heart starts to race and i usually get really hot/warm and feel like i cant breath. Sometimes I question myself whether I actually had a seizure or whether it was just a… read more

I have noctornal sezuires that last 30 to 45 seconds and maybe a minute sometimes which happen in my sleep, deep sleep and I have no knowledge of them or if they happen or when except when I wake up sometimes or when I go to visit my neroligest. Asking anyone who has noctornal sezuires as primary sezuires or has had them at any time mine have never caused me any problem except the obvious life problems. I have been having my noctornal sezuires now that have been actually waking me up in the… read more

I no longer have these, but it used to be a common occurrence. I know there are many, many types of seizures but have never found one that fits what used to happen to me. Can anyone tell me what this is??

* It lasted an entire day. From the time I woke up until I went to bed at night. Usually about 13-16 hours. Was always fine the next day
* I was always conscious.
* Never extra tired.
* No twitches. No pain or even physical discomfort of any kind.
* Most people didn't know anything… read more

I have autoimmune diseases, so I wondered about it.

I want to know

I never get a warning a seizure is about to happen, I let out a scream ,stiffen up lose my bladder and bowels,these started a year ago from June,I take 1550 mgs of Keppra a day and take 1ml of Clobazam (Ionfi) at bedtime,Ill be 63 in a few weeks and I don't feel Im getting the right treatment,I had a bad seizure Thursday and have been waiting on a call from Neurology in which I see a Nurse Practitioner as Neurologist are hard to come by through the network I treat with and they rarely see me

Has anyone ever done an in-hospital VEEG(mine is going to be 5 days) and NOT had a seizure?

I’m absolutely terrified of this happening. I usually have 3-4 seizures a month. The NP told me if I don’t have a seizure during the VEEG they’re going to say I have PNES(my epileptologist didn’t say this, the NP did). I’m not sure how they can just jump to that if I don’t have a seizure. I don’t understand this!