I’ve Been Having Trouble Worrying About Being Alone As My Seizures Have Become More Frequent. Does Anyone Else Have This Problem? | MyEpilepsyTeam

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I’ve Been Having Trouble Worrying About Being Alone As My Seizures Have Become More Frequent. Does Anyone Else Have This Problem?
A MyEpilepsyTeam Member asked a question 💭
posted November 14, 2020
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A MyEpilepsyTeam Member

Your welcome @A MyEpilepsyTeam Member . Just a little Tibit . An Epileptologist is also a Neurologist but understands Epilepsy. So they are able to find other paths to ,as I said above. If your not sure where to start , try getting a hold of the Epilepsy Foundation in your state. They maybe able to send you in the right direction..

Wish you luck and have a good rest of the week.

posted August 11, 2021 (edited)
A MyEpilepsyTeam Member

Yes my husband works and my kids are married now so if I have a bad time I make sure I get my breakfast and take my medications and I go stay in my recliner al day only get out to eat take medicine and go the bathroom

posted November 14, 2020
A MyEpilepsyTeam Member

I used to. But then i simply had to correct it. First you have to find out why your seizures are more frequent. It could be a number of things. Are you taking your medicine on time? Are you consistent every day? There are a lot of folks who have seizures and don't know that soda, chocolate and coffee have caffeine in them. Caffeine will cause triggers which leads to seizures. For some, sugar is a trigger also. It all depends on the persons tolerance level because everyone is different. I suggest begin keeping a journal of when you need to take your meds and what is the dosage. How you are feeling before taking your medicine and after. Some meds require you to take it with a meal. The information you gather is helpful in sharing with your neurologist so she/he can use to make adjustments with your treatment so you will feel better. Less Stress = Less Mess which equals fewer seizures due to stress. I used to have to have the same issue until i started reducing the stress and worry. I didn't know how much of a problem they were until i started to keep a journal of what i was doing and if i was taking my meds on time. Once you have an idea of your daily actions it easy to notice what is causing your worry. Hope you have your seizures reduced soon. Take care.

posted November 14, 2020
A MyEpilepsyTeam Member

Hi ShariSalum. I understand your feelings about the Dr. . The fact is, that we do deal with it on the day to day, month to month and year to year. It has more to do with coping. Coping isn’t easy either. That can take time too. I was born w/ Epilepsy and It took me my entire youth to my early adulthood to learn and cope with my Epilepsy. If it wasn’t for the Epilepsy Foundation support group, I don’t know where I would be today.

When I switched from a Neurologist to an Epileptologist was a big change for me. Instead of just trying one medication after another and a EEG here and there, I was being shown different paths I was able to take or try if I wanted to go that direction. The Epileptologists I’ve experienced with, were very respectful. They listened to what I had say or ask and never slammed down down on me, telling me, that I was wrong or throwing the card at me saying “ONLY THE DOCTOR IS RIGHT” . They don’t know everything and they aren’t God. Instead of saying it’s not possible, they should actually check and research the issue.

posted August 10, 2021
A MyEpilepsyTeam Member

I’ve been like that for 2 months now could not be left alone for long periods of time
My has to work thank God he is self employed so he is able to check on me and even come home
My daughter lives around the corner but I have the emergency set up on the iPhone and it will call 911 I s add lee have duo so if I feel an aura I call my girls. But I still would be a little concerned in between Time that something could happen while I’m alone
Today makes 2 days seizure free and feeling more like myself. These seizures are something

posted July 28, 2021

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