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If Youve Dealt With Epilepsy Your Whole Life, How Do You Know What Healthy Feels Like?

If Youve Dealt With Epilepsy Your Whole Life, How Do You Know What Healthy Feels Like?

Youre supposed to be prepped when going to the dr but what if you are always and have been (exhausted, anxious, seizures, depressed, diet problems, medication side effects, pick anything) so its your norm and dont realize its something to address? What tricks are there to tell them everything not leaving anything out.

A MyEpilepsyTeam Member said:

I've had them all that you listed. I always have a list with everything I need to ask and tell my nero about right after I get out of my first appointment till the next one about side effects of the seizure medication I've been on and any new ones that appear and what happens if I get on a new kind of medication and If am suggested to get on a new medication I'll ask about it and get the name as I also like to do my own research on it then just agreeing on it. I also put down the time and day with the date on how many sezuires I've had that I know of and my amount of exhaustion due to the 3 meds that am currently on all have that side effect which I take twice daily. And how I've felt with my depression while taking my meds.

posted over 1 year ago
A MyEpilepsyTeam Member said:

Thats one of the big problems for me, it takes me longer to process what a doctor said or asked in my mind, then get my answer from wherever it is in there all jumbled up, by then they already asked a different one so i either didnt hear the new question or they just didnt get my answer. I fully realize this is unfair and 'sounds like i need a better supportive neurologist who understands' thats what im looking for but i feel like i should get double appointment time sometimes just cause it takes me longer. Ik im not the only one but i have to stop being so passive about it.

posted over 1 year ago
A MyEpilepsyTeam Member said:

Steve Price:
Doing my best to stay as "Healthy as Possiblle"
Also eating things that won't bring on any pain to my joints.
Try to have only two slices of bread a day, I eat eggs & protein.
Suffer from Type II Diabetes since May 28, 2010, also COPD, ASTHMA
CHRONIC MIGRAINES~ Those I can't do anything for.
One thing I do is drink lots of water to clear out my kidneys.
Wishing you a Happy & Healthy Jewish New Year !!!
WISHING that you have GOOD HEATH .

posted over 1 year ago
A MyEpilepsyTeam Member said:

Have never been diagnosed with Narcoelepisy or ADD/ADHD.
DID take both VALIUM & DEXEDRINE,
LOST weight on DEXEDRINE~~HATED the way VALIUM made me feel.

posted over 1 year ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member thats awesome that you get such frequent visits, that would definately solve some of my problems. I am now referred to a neurologist so hopefully i can set this up. @A MyEpilepsyTeam Member i agree to a point, I do know that where i am at my treatment is lifelong. Its treating my symptoms, and managing medications and results of my craniotomy too.

posted over 1 year ago
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