Multiple Dr.s will be visiting You when You are having this test-the interns at the hospital will be there also-This is a huge advantage/possibility for everyone to learn more about the human brain. Before You go and have this test tell other people all the Dr.s that are going to be involved in reviewing the results You want to hear their opinions/ask for one Dr. by name specifically-alone. Tell that Dr. to keep that meeting a secret/private-that is a FEDERAL LAW. Ask as many Dr.s questions alone as You want to and get their opinion. You have he final decision about what to do.

@A MyEpilepsyTeam Member i know the feeling. i have 4 type of seizures. i'm getting the tech term first and then my terms... auras, simple partial (focal onset aware), complex partial (focal onset impaired awareness), and generalized grand mals (tonic clonic)... spaceouts, lip curl, 'ma' talk (only can say ma or mom), and blackouts.
anyway (back on topic), i wonder if you can get your med records sent to you? i mean it is your body. and the seeg can not work. the article said that 'If you have generalized epilepsy, SEEG surgery is not an option.' probably because seeg pin point the cause and if you have generalized it will mess up the results.
my tech diagnosis is uncontrolled complex partial cause by genetic celiacs disease (uncontrolled food seizures). anyway, (what i understood it) the uncontrolled just means you have to take your meds until you die. my 4 thing that i make me seizure free (for a lot of months) are the keto diet, cbd oil, keppra generic (levetiracetaim), and phenobarbital.
most drs only do meds and surgery... most other drs only do meds alternative meds, and then surgery. if you want, you wanna get a 2nd option. in total i have about 3 hospitals and a lot of drs. remember, this is your body... you need to know your body. that means researching, writing down your dr note (audio or video recording it helps), and get copys of your tech term for diagnosis... test results... and other treatments (as need be).
you kinda have to become a dr without the licence part.
remember, 1st trust your gut. 2nd trust your dr(s). 3rd is do your own research. if you don't trust your gut, everything will fail but if you can't trust you dr, get another dr.

Mentioned Users

A MyEpile...

Print the questions using a computer or write them down leave them/hang them on the wall next to the phone. Leave a pen close by so You can write down the answers also. Good Luck in the Future!

When I had that test done the surgeon put small holes in both sides of my brain. The electrodes were then inserted in those places, multiple places. Then my head was covered with gauze to make sure it would stay clean. The electrodes wires were attached to something I could not see behind my head. I never felt any kind of pain at all.

Don't let them tell you different. Don't get me wrong I'm seizure free but it would have been nice to be prepared.