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Have any of you with Tuberous Sclerosis been seizure free? If so then what medication are you taking?
I just recently heard of it. Im kinda between neurologists so id have to bring it up at the follow up if im interested. Im currently on 450mg trokendi, 250mg vimpat, 200mg Xcopri for epilepsy, and other things not related to my epilepsy.
I tried it for a year w/ chews. It helped but it wasn’t complete!
I was diagnosed recently with MS and after a seizure last Monday (which I lost memory of two days) I was told I suffered an episode at hospital with Todd's paralysis along with a prolonged posticital period. Anyone else ever been told this?
I had Todd’s Paralysis. Had several times I woke up too weak to initially walk. I didn’t know I’d had a seizure because it was in my sleep. Was still with ex when I got told I had Todd’s. Got up to go… read more
I take Afinitor as well as Keppra and Tegretol for seizures. I have Epilepsy and Tuberous sclerosis and hypothyroidism
I find my seizures are getting worse and more frequently.
Here is what you are dealing with,
https://www.drugs.com/afinitor.html
https://www.drugs.com/keppra.html
https://www.drugs.com/tegretol.html
Are there other people who also suffer from urinary incontinence because of meds
Yeah, I think that it's a combo of stuff, my condition and meds, and age, a natural thing, etc, a inconvenience but. No prob,
Your doctor would have diagnosed you, you'd have white spots on skin and fibrosis on the nails. The doctor would have shut all lights off and would of took a blue light to your skin to see if you have the spots.
What is tuberculous sclerosis?
Thank you
I have never misused any of my medicine and was on diazepam(valium) prescribed by my family doctor but was taken off by my neurologist. He said that if they needed to treat me in the emergency room that is what they would use. I understand that but I only used it if I felt like one was coming on so I don't see a big problem here. What happens when my heart gives out due to a grandmal seizure?
Valium was used alot at the Maudsley hospital's epilepsy unit in South East London, a few of my friends at Windsor House were on it, who had also depression. I never took it
Hi All
Has anyone been on Keppra and had Lamictal added? My son was fine up until last week he was at 75mg twice a day of lamictal and seemed to get a bit tired the second week after each dose increase but last week he was very tired and ended up missing school. He doesn’t seem to be getting any better his energy levels are so low. As of today he is at 100mg twice a day plus the usual 1500mg of Keppra twice a day. When I spoke to the epilepsy nurse at the start she said that Lamictal usually… read more
Questions are good. Who knows a question you ask could have a b solution that's helpful.
I take Afinitor as well as Keppra and Tegretol for seizures. I have Epilepsy and Tuberous sclerosis and hypothyroidism
I find my seizures are getting worse and more frequently.
U r not going crazy it’s just yr tablets that make u feel like that and I am on tegretol and some other tablets to for my epeilepsy .
