EEG Doesnt Show Seizures But Have Had Over 200 In 7 Yrs GMs And Partials | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
EEG Doesnt Show Seizures But Have Had Over 200 In 7 Yrs GMs And Partials
A MyEpilepsyTeam Member asked a question 💭

So my seizures have gotten worse. The 8th I had 1 GM then the 29th had 3 GMs and then the 13th had 5 GMs was unresponsive for 12 hrs throwing up combative but this EEG doesn't show seizures however I've had seizures starting with 1 GM 7 yrs ago lasted 15 seconds recouped 20 mins now I have GMs and what I believe are partials back to back the most I've had was 34 GMs back to back had to be put into a medical coma for 3 days they didn't believe I was gunna make it roughly 200 seizures total. Now… read more

posted February 22, 2019
View reactions
A MyEpilepsyTeam Member

ok so those sound more like Typical Grand Mals. I would talk to your Neurologist. Sometimes they can be controlled for a bit and then become refractory ( or less controlled as your body becomes too used to the meds).

posted February 25, 2019
A MyEpilepsyTeam Member

In 2017 when I began seeing another neurologist he did a regular EEG on me in his office & if I remember right that came back normal. Then in November of 2017 he did a 3 day at home video EEG & I was still taking my medicine during I believe. My seizures don’t happen real often & so I didn’t have one during that video EEG but it did show activity on the left or right temper lobe I believe. It was March of 2018 I had my last seizure & my Mom recorded me having it so I could see what I look like while having one & the neurologist was able to see the recording of it. Hope they can figure out something to help you. Good luck! Sending Thoughts, Hugs & Prayers that your seizures stop. Your friend in Texas, Becky

posted February 22, 2019
A MyEpilepsyTeam Member

They have no idea which is partly my fault partly insurance keeps cutting me off and was also running from the seizures thinking praying they'd magically go away so now I'm trying to change how I'm approching this taking my meds how I'm supposed to and life changes and pushing to get answers cuz I guess I never realized they didnt have really any answers they were just assuming. And now I'm fighting to know why and how to get my life back I cant keep feeling like this the fear depression loneliness hopelessness stressed beyond my physical limit...beyond my phycological limits...its making me a different person and I dont like who I'm becoming so no more

posted February 28, 2019
A MyEpilepsyTeam Member

I’m so sorry. That is absolutely horrible. Have the doctors tried every single test? Are the seizures coming from both sides?

posted February 28, 2019
A MyEpilepsyTeam Member

No just the 45 min EEG an EKG and CAT scans the Neuro did ask what happened since 2016 all I had to say was alot ive been thru alot every year usually every month sometimes daily and what is the cardiogenetic syncope?

posted February 27, 2019

Related content

View All
Clear Diagnosis
A MyEpilepsyTeam Member asked a question 💭
Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭
Do You Know The Old And New Names For All Of The Epileptic Seizure Types?
A MyEpilepsyTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in