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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Work ?

Work ?

How many people still manage to still work full time and have breakthrough seizures?

A MyEpilepsyTeam Member said:

I work with a company I can make my own schedule and full time is 30 billable hours. When I need a break I just have to reschedule the clients I see for a later period in the week. It's hard sometimes but it's been manageable

posted 12 months ago
A MyEpilepsyTeam Member said:

Hi Roy Tinis, you are 100% correct, we the epileptic people are always at a risk of getting into short term memory problems, headaches, daytime seizures, etc. And most of us suffer from seizures due to physical and mental fatigue resulting from fulfilling job responsibilities, and the amount of money we get from disability insurance is just not enough to run the home, there should must be added extra benefits to epileptic people if we can make a force to emphasize the governments?

posted almost 2 years ago
A MyEpilepsyTeam Member said:

There is quite a variety of responses, which indicates that different people have different experiences at work.
In my early career I used to have regular partial seizures, mainly feelings which only lasted about a minute and after which I was generally ok. Occasionally I used to have more major seizures when I would do silly things. However the more major seizures rarely happened at work.
Fortunately I had good bosses in the main who understood my situation, although my employment was threatened by my employer on a couple of occasions.
I have also had bosses who were definitely awkward.
Since my operation I have had 2/3 occasions when I had seizures at work, However these occurred when I was having issues with my medication.
I was asked to get a fitness to work once, which I duly presented.
On another occasion my boss was more concerned that she hadn't been told earlier than she was to ask how I was.
I am still working and fortunately I am generally ok.
The most frustrating thing for me is getting a job where the employer wants to employ people who drive.
I fully understand those on this site who fear for their employment.I went through years trying to struggle through my minor seizures and trying to cover up when they happened.
I guess that if you can go to a safe space at work while your seizures are happening, then this is a good thing so long as your employer is happy for you to do this, and knows what is happening. Good luck.

posted about 4 years ago
A MyEpilepsyTeam Member said:

I always didwork and worked 30 yrs at GM and never had a problem now retired and 25 yrs sz free

posted 12 months ago
A MyEpilepsyTeam Member said:

I was working full time. I am now more or less retired after 40 years plus doing support work. I don’t get so tired, and I no longer have to explain my epilepsy to prospective employers, which is a bonus.

posted about 2 years ago
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