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Has Anyone Had Embarrassing Things Happen When They Had A Seizure?
A MyEpilepsyTeam Member asked a question 💭

Has anyone been either at home or in public and had a seizure that was embarrassing?

posted January 25, 2018
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A MyEpilepsyTeam Member

Yes and it's not fair to us because we can not control what we do. But those embarrassing things that happen make us stronger.

posted February 4
A MyEpilepsyTeam Member

Loss of bladder control was once worst part of my seizures. If unaware would try taking off pants as an unconscious result. Bout 5 years ago tried new panty like products that work like a charm w/o the bulk of pads that didn't. Now I don't have this reaction at all conscious or not. They are so thin even come in bikini sizees by Depend or Always. After 40 years no more worry bout loss of bladder control. Daughter who is physical therapist says my reaction is quite different. Recommends them to all patients with this concern. Try them for self to eliminate worry.

posted January 30
A MyEpilepsyTeam Member

That's the 1st page of my little red book & is noted throughout my cellphone--> can't carry electronic devices into my job so I keep my notebook updated in my pocket!!

posted January 2, 2021
A MyEpilepsyTeam Member

BE careful.
If you feel a seizure coming on and you're near you bed get into it and ride out the seizure ~ IF you can.

posted April 23, 2019
A MyEpilepsyTeam Member

Dana, they were probably partial seizures. These were labeled "Johnny being Johnny" because I had a whole variety of them back then even before developing the ones where my subconscious could speak during some of the Complex Partial Seizures. It was tough because researchers did not prove that the Epileptic Partial Seizures existed until 1995 -- about 16 years after I had my first. And my Mom might have had them when she was younger of the "daydreaming" form because she said others told her she was daydreaming, but she had no memory of it. However, I don't recall if she told me of a teacher talking to her about it -- however the answer is in my memory, but I cannot get to it at the moment.

posted February 28

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