Has anyone been either at home or in public and had a seizure that was embarrassing?
If you feel a seizure coming on and you're near you bed get into it and ride out the seizure ~ IF you can.
@A MyEpilepsyTeam Member You just summed up the most important feature of this site: a place where we find out that embarrassing things like that and many other things about our seizures are not unique and you can quickly find someone who knows exactly how you feel. I had 2 seizures like you on a Boston subway train with the second one lasting long enough that the EMTs were there when I woke up from it. The advantage for me is that I had already been working for Massachusetts General Hospital (Treadwell Health Science Library) for 8 and 12 years, respectively--and MGH knew from the time I was hired that I had Epilepsy. I told the EMTs that I would walk the 2 blocks to MGH to work. I had no need of going to the ER. And I had my Medic Alert necklace to confirm for them that I have epilepsy. I had to go home from work (because I had the seizure in each case--with a sibling working in Quincy at the time coming to pick me up and drive me home in each case. The advantage of working at MGH was that I could use my ID and get non-clinical scrubs to change into.
I recently got off a train at a stop before the one I should have. I have had absences all my life, fortunately they don't happen too often. I fully empathise with anyone who finds themselves in embarrassing situations as a co sequence of their epilepsy.
Generic Tegretol has helped me stay seizure free unless I am under extreme stress like the flu or a really bad emotional argument. Before Tegretol, I have tried to eat coins I was holding in my hand, walked out into traffic twice, car crashes, etc. Thankfully, no one was hurt in those car crashes and neither was I.
Thank you for your kind words.
How old were you when you were diagnosed with Epilepsy??
And what are you on now~ What medication, and what is the dosage??
Were here to be of help to each other dealing with Epilepsy.
I was six when Diagnosed, had my first GrandMal at age fifteen and my last
when I was Thirty two on March 28,1986.
I give all of this to the drug TEGRETOL that I've been on since my first
GrandMAL when I was fifteen. I've been Seizure Free 34 years.