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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Had Embarrassing Things Happen When They Had A Seizure?

Has Anyone Had Embarrassing Things Happen When They Had A Seizure?

Has anyone been either at home or in public and had a seizure that was embarrassing?

A MyEpilepsyTeam Member said:

That's the 1st page of my little red book & is noted throughout my cellphone--> can't carry electronic devices into my job so I keep my notebook updated in my pocket!!

posted over 1 year ago
A MyEpilepsyTeam Member said:

ElaineLBoulding:
BE careful.
If you feel a seizure coming on and you're near you bed get into it and ride out the seizure ~ IF you can.

posted about 3 years ago
A MyEpilepsyTeam Member said:

I’ve always had auras and sometimes in the past woken up after having a tonic clonic seizure (I knew as I had bitten my tongue and had a massive headache) but after a change to Keppra 😡 a few years ago I started having complex partial or absence seizures. One day I was on a bus coming home and had an absence seizure, the ambulance was called and apparently I was grabbing all the rails as they were trying to get me off the bus. I’m glad I was taken off Keppra (due to Keppra rage 😡) I still have the occasional absence but I am aware of the triggers now.

posted 4 months ago
A MyEpilepsyTeam Member said:

I understand how people that dont know epilespy are scared. People you know, you should tell them about your epilespy.

posted about 1 year ago
A MyEpilepsyTeam Member said:

why would someone be embarrest, a person with Cancer is not embarresed. People care to much what others are thinking, others don't matter, and if they give you stupid comments, look for other friends. People ask me why I don't drive, I just say I have a ban for 2 years due to medical issues, most think it is drunk driving, but I don't need to explain myself to anyone....let them think what they want.

posted about 1 year ago
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