Has anyone been either at home or in public and had a seizure that was embarrassing?
If you feel a seizure coming on and you're near you bed get into it and ride out the seizure ~ IF you can.
@A MyEpilepsyTeam Member You just summed up the most important feature of this site: a place where we find out that embarrassing things like that and many other things about our seizures are not unique and you can quickly find someone who knows exactly how you feel. I had 2 seizures like you on a Boston subway train with the second one lasting long enough that the EMTs were there when I woke up from it. The advantage for me is that I had already been working for Massachusetts General Hospital (Treadwell Health Science Library) for 8 and 12 years, respectively--and MGH knew from the time I was hired that I had Epilepsy. I told the EMTs that I would walk the 2 blocks to MGH to work. I had no need of going to the ER. And I had my Medic Alert necklace to confirm for them that I have epilepsy. I had to go home from work (because I had the seizure in each case--with a sibling working in Quincy at the time coming to pick me up and drive me home in each case. The advantage of working at MGH was that I could use my ID and get non-clinical scrubs to change into.
I recently got off a train at a stop before the one I should have. I have had absences all my life, fortunately they don't happen too often. I fully empathise with anyone who finds themselves in embarrassing situations as a co sequence of their epilepsy.
@A MyEpilepsyTeam Member I know how you feel about the embarrassment. I have had a few times when I have had a full seizure (and wet myself) while on a subway train in Boston during rush hour. It is worse because they have to do a delayed stop at the next station for help to arrive.
And since the majority of people think that the only types of seizures are the Grand Mal that TV and Movies like to display (more dramatic than many of the complex partial seizures because of the one), it generates more stares from people (and misconception, like in your case, that you are a drunk) because they do not understand there are many other forms of seizures.
I've had a few embarrassing incidents with my epilepsy. I've had them while working in kitchens, keeled over in front of all of the staff. I've wet myself in public, too. I often look like a drunk due to my medication (Epilim, 500mg, twice daily), as it makes me shake and slur my speech. I all too often feel embarrassed about my illness, but a lot of this is due to the fact that I know that people still don't really understand what is going on when they see someone having a seizure. I think that if people in general were more awarte of what was going on, maybe knew how to deal with someone having a seizure, then the embarrassment that sufferers feel would be lessened. I don't think it would ever fully go away, but maybe a little bit more understanding of what is happening may make epileptics able to feel a little more comfortable within themselves?