Has anyone been either at home or in public and had a seizure that was embarrassing?
If you feel a seizure coming on and you're near you bed get into it and ride out the seizure ~ IF you can.
@A MyEpilepsyTeam Member You just summed up the most important feature of this site: a place where we find out that embarrassing things like that and many other things about our seizures are not unique and you can quickly find someone who knows exactly how you feel. I had 2 seizures like you on a Boston subway train with the second one lasting long enough that the EMTs were there when I woke up from it. The advantage for me is that I had already been working for Massachusetts General Hospital (Treadwell Health Science Library) for 8 and 12 years, respectively--and MGH knew from the time I was hired that I had Epilepsy. I told the EMTs that I would walk the 2 blocks to MGH to work. I had no need of going to the ER. And I had my Medic Alert necklace to confirm for them that I have epilepsy. I had to go home from work (because I had the seizure in each case--with a sibling working in Quincy at the time coming to pick me up and drive me home in each case. The advantage of working at MGH was that I could use my ID and get non-clinical scrubs to change into.
I recently got off a train at a stop before the one I should have. I have had absences all my life, fortunately they don't happen too often. I fully empathise with anyone who finds themselves in embarrassing situations as a co sequence of their epilepsy.
@A MyEpilepsyTeam Member How are you doing with your seizures now? Have you managed to reach a seizure-free time? Now that she is able to deal with the fear brought on by seeing you have one, has she noted details about your seizures that she witnessed? If you are not seizure-free, then your neurologist can use all of the details that you can provide about the form, length and other details of each seizure. I know that all of them (from what you have just told me) are absence seizures (conscious mind is absent even if your body is not unconscious, thus you have no memory of the seizure). All except a very few of my seizures have been absence seizures.
No i am not Embarrassed after i have a seizure. Because i never know what i did. I ask people that were around me what i did but never embarrassed. I heard that i pull up my shirt so i think i am giving the people a good show😀