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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Had Embarrassing Things Happen When They Had A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Richmond, VA

Has anyone been either at home or in public and had a seizure that was embarrassing?

January 25, 2018
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A MyEpilepsyTeam Member

Yes and it's not fair to us because we can not control what we do. But those embarrassing things that happen make us stronger.

February 4, 2023
A MyEpilepsyTeam Member

Dana, they were probably partial seizures. These were labeled "Johnny being Johnny" because I had a whole variety of them back then even before developing the ones where my subconscious could speak during some of the Complex Partial Seizures. It was tough because researchers did not prove that the Epileptic Partial Seizures existed until 1995 -- about 16 years after I had my first. And my Mom might have had them when she was younger of the "daydreaming" form because she said others told her she was daydreaming, but she had no memory of it. However, I don't recall if she told me of a teacher talking to her about it -- however the answer is in my memory, but I cannot get to it at the moment.

February 28, 2023
A MyEpilepsyTeam Member

That's the 1st page of my little red book & is noted throughout my cellphone--> can't carry electronic devices into my job so I keep my notebook updated in my pocket!!

January 2, 2021
A MyEpilepsyTeam Member

ElaineLBoulding:
BE careful.
If you feel a seizure coming on and you're near you bed get into it and ride out the seizure ~ IF you can.

April 23, 2019
A MyEpilepsyTeam Member

Donna: i had seizures when i was young in school, the teacher thought i was daydreaming, not listening.

February 26, 2023

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