Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Chronic Fatigue And Confusion

Chronic Fatigue And Confusion

Since I was diagnosed with epilepsy in 2016 I am more chronically fatigued where all I want to do is sleep. The slightest tasks wear me out and I've been recently dizzy and have memory loss. Is this normal? The fatigue is the more worrying point for me. I have left tempol lobe epilepsy and am currently taking 200mg of lamotrogine. Please advice.

A MyEpilepsyTeam Member said:

Welcome to the site @A MyEpilepsyTeam Member . Your chronic fatigue could be coming from seizures, that leads you into feeling tired.

You may want to check out the side effects of your medications. Feeling dizzy maybe one of those side effects ( check out ) . That site will show you the many side effects from the meds your on.

But then again some of your struggles could also come from bother your Epilepsy and meds.

It too hard to tell at this time. Maybe talk to your Dr. And see if they have any advice, that may help you reduce the fatigue tiredness. Maybe fix a different medication or something.

edited, originally posted over 4 years ago
A MyEpilepsyTeam Member said:

I take Lamictal and need at least 12 hours of sleep. I nap alot to catch up. It is hard to get motivated to get everyday things done. Doc says it's depression caused by having a chronic illness, but I wouldn't be depressed if I had energy. Coffee helps, but too much makes me sick.
Stuck, I guess

posted over 2 years ago
A MyEpilepsyTeam Member said:

Hi @A MyEpilepsyTeam Member ( got a laugh from your username ) When I was younger , in my teens , I was struggling a lot . Never felt I was spoken to ,but down too and many other things. I also felt and thought , I was the only one with this disorder. I started spiraling down in depression. Then I got into a support group through the Epilepsy Foundation. I met other people going through similar struggles. I learned more about myself, my group and the staff that ran the program. The more I attended , the more I came out of the spiral.

Staff member brought up a point to everyone with Epilepsy. We control our life not Epilepsy ( which is my number 1 rule and reminder ) .Epilepsy is just a nuisance and interferes with our lives. That doesn’t stop us from choosing what we want or need .

After learning how similar but different we all are and knowing that I wasn’t the only one with Epilepsy, I started to change the way that I thought first . Then I was able to start coping which the many issues. Some right away and some took a little longer.

We have a challenging lifestyle, that we never chose . Learning and understanding that are many thing added to our list , to The Fact of Life. Things taking meds the rest of or our whole life and experience many side effects. Understanding that we have seizures and may or may not be able to control them and ect.

My main thing that I do is to keep positive, do things that I like and can do on my own or with my kids , think about to good things that went on during the day or a past event . Even If I have a seizure or more, I don’t let it get to me . I would be lying if I said that I never get down now and then . I just won’t stay down and climb out of the slump I was in.

I the other things that keep me going , is the supports of my families, friends , and a good Epileptologist. To those who don’t like to be around me, can just hope that fate won’t come around ,where they get diagnosed with this disorder.

posted about 3 years ago
A MyEpilepsyTeam Member said:

Ashaly I have the same symptoms you have, and I been having seizures since I was 2years old and I am 29years old know so its normal your going to see more .. but you have to get Active with time the doctors are going to tell you

posted over 4 years ago
A MyEpilepsyTeam Member said:

Thank you for your reply. I will look into this, I see my neurologist in may which is ages away, will also see if I can get my appt forwarded

posted over 4 years ago
Already a Member? Log in