After all the seizures, achy muscles, meds, hospital stays, ambulance rides. What has this disorder made you appreciate, love, and accept more?
Well I've had it since age 10 months and am 28 now but I now appreciate every little moment in life. I live my life like it's my last day. Because honestly we never know when it will be our last day. The fear of SUDEP has caused me to have panic attacks. And if your friends and people around you can't take you having epilepsy then they were never true friends to begin with. So love always, live like there's no tomorrow and appreciate every little thing in life. People may look at you different but just either ignore it or just say well I know I have a brain what's your excuse?
Value life and treasure every second of it
I have had since I was 3 years
Now I am 35
I know SUDEP is a possibility but I try not to let it effect my life (as in not thinking about it) because if it does happen it will happen.
I only take myself to the Hospital if I believe the injury needs attention (I don't like wasting the NHS's money and time on something that can be treated at home)
What a great boss
The same thing as Vanessa had said that she was given the chance to enjoy life and support from her parents and friends and I have friends that care about me and they watch over me when I think I'm going to have a seizure episode and they call the store manager to be aware of it and they gave me a another chance to come back to work after several weeks of medical absents and my boss just knew what I was going through.