It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...
I've been having constant INTENSE anxiety lately causing me to have extreme visual disturbances that seem like they are about to turn into my visual auras that happen before I have a gran mal seizure... which is a catch 22/vicious cycle because I get so scared that that in itself causes even more panic and my heart starts beating really fast and my vision gets worse and YES I feel like I'm having a panic attack and my eyes move around everywhere in this choppy way if that makes sense? I just changed my medication and that is when this all started happening to me as well- I haven't had any gran mals, but I have been having the exact thing you're talking about- thinking about it now, it happens badly at night (I think because laying in bed, looking into the darkness, it may have something to do with your eyes attempting to process light when there isn't any to process in addition to the fact that we may be laying there thinking about it so much that it is causing anxiety and panic), and I also feel the strange disconnect feeling, I would almost describe it as feeling more dumb or "out of it"... what meds do you take?
Hi Crystal . If it's before your seizure , you could be experiencing an aura.
@A MyEpilepsyTeam Member yeah i mean grand mal its a term i picked up here lol
When I have a grand mal, I don't remember much after the fact, except the extreme anxiety during the aura that leads to my seizure - my husband and son told me that sometimes as I'm going out I'll cry out, "help me!" It is very upsetting to think that they have to witness that while completely helpless to do anything.
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