Living the lifestyle of Epilepsy, I've learnt that everything we do , involves a certain level of risk. For example, walking, chores, working, leaving our home, driving, riding thrill rides at an amusement parks and ect. These examples have different levels of risks. How big of risks are you willing to take , to live a close to normal life.
Poems by Leo Marks : 1 / 1
The Life That I Have - Poem by Leo Marks
The life that I have
Is all that I have
And the life that I have
The love that I have
Of the life that I have
Is yours and yours and yours.
A sleep I shall have
A rest I shall have
Yet death will be but a pause
For the peace of my years
In the long green grass
Will be yours and yours and yours.
I like to think of it as "adapting" rather than giving up things. For instance, I shower rather than bathing, let someone else drive rather than put others at risk. If I think of it in these terms, it doesn't feel like I've lost something, but protected others from loss or inconvvenience.
First who determines what is Normal for one may not be Normal for Another. That is one Reason why EPILEPSY is so CONFUSING and ADAPTABLE for many.
There are things I can't do now like drive or swim alone etc. I try to live life normally but I also know my triggers and some of my warning signs which I think is important for anyone with epilepsy if you are out and about on your own.
I also got a couple of t-shirt from epilepsy action which people will see I have epilepsy.
We never share your personal information with anyone.