Do not allow epilepsy to define you. That is correct. And if your medication regimen is working well for you, do NOT allow anyone to use you to try new medications. I did that one time and the neurologist I was seeing refused to believe me when I told him that the new medication was actually causing me to have seizures. In other words, don't be a test dummy. If your medications aren't working well enough, have a talk with your neurologist and get a new regimen of meds set up for yourself. But learn about the side effects of the medications BEFORE changing to take them.

There is no reason You should be ashamed of your epilepsy. It is not a problem You asks for, it is NOT Your fault for having it. I have had this problem for over 50 years. There is no telling what You can do if You have not tried doing something new. John Roberts, a Harvard Law School Grad is the Chief Justice of the Supreme Court, he has epilepsy, a Gold Medal Olympic Champion that has set world records-Florence Grifith Joyner had epilepsy. I have a VNS now and will be getting a new and improved one in the future. Use every possible way to beat Your epilepsy, and don't give up. I know that is easy to write and very frustrating to do. So use every possible thing You can to help Yourself: find a new Dr. if You don't like the one You have now, remember Dr.s are sworn to keep secrets. If Your medication is making you uncomfortable because of the side effects, Your Dr. will find a new one. One of the most important things that I think everybody should do is ask their Dr. any question they have. If You have any questions from my experiences don't hesitate to ask.

Angela, There is no reason You should feel ashamed of having epilepsy. Did You or anyone else in Your family want, and ask You to have epilepsy? My guess is NO! So You are not guilty of the reason for having it. Nobody is perfect from the day they were born and never will be. The world 🌎 is an unfair place. Remember epilepsy is not the only part of You. There are very good important, positive, powerful parts inside You also. People that don’t know the real facts about epilepsy, may be afraid of it. They need to tease the people that do so they can stay in the right social circles. Do a little research, find out who else has, and had epilepsy. Ex. If a person that runs track ask that person if they are going to set a world record and win the gold medal in the Olympic Games. Florence Griffith Joyner did that. President Teddy Roosevelt had epilepsy, Elton John has epilepsy. They are important people, look into the history of epilepsy get more info. Epilepsy is an old problem. Best of Luck to everyone! 🥜 Peanuts

I used to be ashamed and very emotional about me having Epileptic Seizures. As I got older and into my mid 20s, I chose to try things out along with educating myself. The two things I have tried are taking a natural herbal supplement (Black Cohosh) which was an aid in helping the central nervous system and trying a massage on the scalp (Biofeedback) which was advertised at my old neurologist office. It stated that it was known to cure Epilepsy. This was a straight up false advertisement. I have educated myself about Epilepsy and others along with having other support groups. It helps me to talk things out, choose to live your life like a normal person, don't allow the condition to define you, support groups, and know your own limitations, challenges, and accept yourself for who you are fully as an individual. This has helped me to not be ashamed of having Epilepsy. This isn't your fault for having the pre-existing medical condition.

Don't be ashamed we are all imperfect thats life seizures just happen to be our imperfections me I make jokes about my grand mals and have my friends joke with me we all laugh our asses off and then we are back to the way life was before! all y'all need to realize how strong you are for making it through all the seizures we go through and getting back up like no worries y'all are gangster and don't even know it all I can say is stay up stay strong and live the best life you can 💯 nothin but love !