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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
10978 questions
Any New Foods That I Can Try To Put In My Diet For Epilepsy
A MyEpilepsyTeam Member asked a question 💭
Can You Still Be Depressed Even Though You're Prescribed 3 Different Meds For Epilepsy (temporal Lobe Damage)?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

yes... depression is one of the common side effect of seizure meds. i have 2 small meds (lowest you can go) and i have anxity and depression. cbd helps (both calms me down and stop having seizures).

posted 11 hours ago
If You Take Phenytoin For A Very Long Time It Can Effect Your Gums And Your Teeth In Later Life
A MyEpilepsyTeam Member asked a question 💭

I have been taking phenytoin for 56 years, one major side effect it has on your gums and teeth, making them come loose then have them out, I want to let anyone who has a denture made in the UK can claim on household contents insurance to pay for them, I did twice and it saved me £8 thousands pounds plus I'm doing it again.

A MyEpilepsyTeam Member

Hi, LesleyDonnelly, when I first started taking phenytoin 56 years ago my dosage was 600mg a day, now I only take 300mg a day with one other AED, what is your dosage?

posted 4 hours ago
Does Anyone Have The Embrace Watch?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I love mine and it come in handy so many time. Even just to track so I can show my doctor
I would take to your daughter’s doctor and see what you can do to get her one
In my personal experience… read more

posted 1 day ago
Does Anyone Else Have Catamenial Epilepsy? (Epilepsy During Your Period)? Any Tips At All On How To Deal With Them.)
A MyEpilepsyTeam Member asked a question 💭

I’m only in my 30s but I’m exhausted with the seizures. And some happen on nearly the same day/wk every month. For 2 weeks I am somewhat seizure free and appear like a perfectly healthy woman. But then the last week of the month arrives and I am roiling in cluster seizures. I never complained about PMS until I learned it causes those nasty hormonal seizures. Now menopause couldn’t come any sooner…

A MyEpilepsyTeam Member

I have recently come across catamenial epilepsy and it seems to be the one I have..Since October I've started clobazam whilst on my period,I was having auras every month and since starting this I've… read more

posted 1 day ago
My Question Is How Hard Is It To Stay Up All Night? This Sounds Silly, But I Am Used To Going To Bed At 2am. Not 6.
A MyEpilepsyTeam Member asked a question 💭

I am testing all week and have to be on sleep deprivation 6pm to 6am. Got to the hospital today at 8am. Wife awake. Will they wake you up or a beeper go off? if you fall asleep. I know they will be watching.

A MyEpilepsyTeam Member

Cheryl, i had the all night deprivation test last year. I would not overly stress about the deprivation. Do the best you can and have someone help you stay up.

I was onsite for testing for 3… read more

posted 7 hours ago
I Suffer With Absences. I've Been Having More The Past Few Months. Since Then I Have Had Tinnitus. Dose Anyone Else Have This Problem?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Have you checked to see if your seizure meds side effects may have started Tinnitus?

posted 2 days ago
Absent Seizures
A MyEpilepsyTeam Member asked a question 💭

I have three different types of seizures. The one that scares me the most are my absent seizures because I do things I don't know I'm doing and can't feel the pain when I hurt myself till after I come out of it. I put both hands on the burners of the stove and had to go to the burn clinic for three weeks. last year I put my arm in a skillet burnt myself so bad I spent 8 days in the hospital and had a skin graph done. it's still amazes me that I can hurt myself so bad like that and not yell out… read more

A MyEpilepsyTeam Member

I use to get an aura or odd feeling before a seizure but now I get nothing. I really wish I had my life like it was before I had my brain tumor and all these seizures after that

posted 2 days ago
I'm Afraid Of Having A Child And It Develops Birth Defects Because Of My Meds , Any Advice To Help Me Get Over This?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I also have two sons without epilepsy. I think it is because my seizures are not hereditary. I am glad and happy to for whatever reason. Also these were not planned childbirths.

posted 2 days ago
Out Of The Blue Here, I Know; But Has Anyone Had A Seizure After The Anxiety Of Seeing A Snake Cross Your Path? I Hate 'em.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Don't know. But I hate mice of any kind. It might not trigger a seizure, but I will move out of the room until it is caught. Stress of any kind can cause my seizures.

posted 2 days ago
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