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Mine can be from music to a tv commercial to the sound of a running toilet 🫠
I know my seizures went from hour's in my youth to about 45 seconds a episode now
I began taking Topamax in 1996 under the care of a wonderful epileptologist. At the time the dosage was rather high and eventually was lowered over time as we found the lower dosage worked. I began taking the generic when it became available. I'm curious if anyone has been on this medication for a long time and how they are doing with it. My current epileptologist has already been contacted. Would you mind sharing your thoughts on this question with me? I appreciate it.
I would party like it’s 1999.
Excellent 💜💜💙❤💜💜 Have A Good, Seizure-Free Night.
There are many types of jobs I would never apply for, because of my Epilepsy
They could cause serious injuries on me.
There are many types of work, that I was Confident doing with out injuring… read more
Hi, I would like to ask for an opinion. My son has been diagnosed with generalized myoclonic-astatic epilepsy, a syndrome characterized by continuous spikes and waves during slow-wave sleep. He has been prescribed Keppra. He is turning 6 years old. We first noticed symptoms during Easter. Symptoms include frequent blinking during the day, with varying intensity - sometimes more, sometimes less, teeth grinding, and head dropping - all lasting just a few seconds, with no loss of consciousness. He… read more
I have Catamenial, frontal lobe, and temporal lobe epilepsy.
I have Grand Mal Seizures so I know they can happen any point at anytime but it’s inevitable to stop the damage of the effect so to me it’s best to live the best of my life the best I can whether it’s… read more
I spend so much time alone that conversation does wear me out. I do need to take time out in the middle of the day and get some rest or I will get a horrendous headache.
I used to have my seizures before I fell asleep and a few days before my period. It seems like they are getting worse though cause I hit my head on the bathroom sink last night and I have only ever done that once in the 15 years I have had epilepsy.
In August of 2022 , I had my DBS put in . Once my DBS was programmed and running my seizures decreased by half ( half of 30 seizures a month ). Today I have a little less than half of the seizures I… read more
I find it very difficult to stay cool when it's warm/hot outside and when it's really hot it makes me feel ill. I was just wondering if that triggers anyone else's seizures?
yes i used to be very sensitive to heat i couldn't go outside more the 30 minutes then i had to come back in but over time i got less sensitive to the heat now i can stay out for hours and hours but… read more
