Sponsored Content
Learn more about available surgeries to treat epilepsy
Read more >
Quick Links
Resources
About MyEpilepsyTeam
Powered By
Have anyone taken this medicine or is on it.
What are side effects and how did you cope with it. Does the med work. Any information.
I'm on epilm at the moment but Zonisamide is slowly being added at the same time I'm slowly coming off eplim, so I'm having change over of med and wondered how it will effect me.
It have been making me very tired.
How is what I'm taking at the moment.
Morning... 600mg epilm & 50mg Zonisamide
Afternoon... 300mg epilm
Evening... 600mg epilm & 50mg Zonisamide
I like being on Zonisamide!
Tried many anti seizure meds and they only differ in intensity and duration, frequency fairly constant-when trying to nap in afternoon or starting with drowsiness 8-9 pm. Frequently awake with recurring seizures (my doc calls them episodes since I don't lose consciousness. A few puffs of medical marijuana allows me to return to sleep without fear of more seizures. Now trying Aptiom (sp?) after Dilantin, oxcarbazapene, carbazapene, kepra, lamictol, etc., etc.
I wonder if he would put me on Dilantin if it would also help my weight issue
I know nothing of it and neither does my mom. Shes never heard of it. It was created or found after she stopped taking meds. The doctors only told me the usual side effects that come with medicine, dizzy, nausea, drowsiness. Anything i need to worry about?
I take Zonisamide. Keeps My weight down too! As far as memory loss, it could be from the Vimpat I take.
And today she’s had nonstop seizures. We are on the fifth week of eight has anyone else experienced this when they switch medication’s or these medication’s?
I had that happen when my neurologist tried to wean me off of my Phenobarbital. At the time I was taking 180 mgs Phenobarbital at bedtime( 3 60 mg pills, bedtime only), We started decreasing it from… read more
Medications
I take Epidiolex, Clobazam and Zomisamide.
It should be fine. But I’m not a Dr. You may get better advice from your Epilepsy doctor
I believe the insomnia started with the addition of Zonisamide. It was manageable at the time.
For unknown reasons Post Surgery I’m not able to get any decent sleep.
We’re starting with trying melatonin. Then a sleep pill (trazadone). If neither work we’ll try lowering the zonisamide.
Generally anything like that has to be done by a GP or the specialist. You can't just play around with it.
I have been on Lamictal (800mg) since diagnosed 20 years ago which controlled seizures well until 3 years ago (have several Gran Mal per year). Dr added Keppra (3,000 mg) but hasn't seemed to be effective and causes rage issues. She is now suggesting Clobazam or Zonisamide. Anyone with a combo of either with Lamictal?
Hi can I drink alcohol all with epilim 500MG 5 in the morning and these are at night Zonisamide 100MG Zonisamide 50MG Lecaent 50MG so I was just wondering am I allowed to drink alcohol at all
I think that is your call, I use to drink alcohol, gave up drinking dec 3 of 2021 and did cold turkey, It was a good call for me, my opinion