Sponsored Content
Learn more about VNS Therapy
Read more >
Quick Links
Resources
About MyEpilepsyTeam
Powered By
Does anybody have a VNS and an RNS that work together? Im trying to get the RNS but at a Previous meeting my dr said they were unsure because i already have a VNS. The last time we spoke to her she said shes spoken to other dr’s and they do have patients who have both and that they work together somehow? My VNS doesnt help me thats why she told us that, i told her we can turn it off and she gave us that info. I’d like to know if there’s anyone on the app who has both and how they work for… read more
It's time to talk to your Dr about trying a new seizure med.
My partner is scheduled to have RNS surgery this month. I would appreciate people sharing their experience tremendously. Recovery time? Any difference in memory? Did seizures decrease?
@A MyEpilepsyTeam Member
I have had a few surgical EEG’s, where the doctors drilled holes in my head. The problem was I wouldn’t have any of my larger seizures for them to see so they were almost a… read more
I do take my meds for my condition, but I do my daily routine of prayer and bible study, I am a Catholic christian mix and I am not perfect and do sin, but that is my first above all that I go by, I… read more
He's getting up to 14 seizures a night he's no quality of life he's down for vagus nerve simulation but I don't want him to get it because I've read too much stories about how it doesn't work and some horror stories there's limited options in ireland for epilepsy has anyone ever went overseas to UK or Scotland or anywhere without doctors referral an in go private with self referral for treatment I can't bear to c my beautiful son suffer anymore its not fair n him I'm willing to pay whatever I… read more
Jen did you see the link I posted for you Ireland epilepsy foundation etc?
So, I've been seeing a regular neurologist for about 3 years now (partial seizures). I had a seizure last month and after that one my neurologist finally referred me to a seizure specialist, my appointment scheduled in October. It's going to be a full day event, I'm going to have a EEG done in the morning and I'll meet back with the doctor later on.
Patricia, yes!
I am still looking at my sons VNS device to see if it actually works only had it inserted in Dec 2023
I have had this condition since I was 16 now 31. I live a very secluded lifestyle, I can't work because of fear of having seizures. I haven't been on any medication since none helped after I had my first two seizures. Any help or suggestion would be very helpful. There is a very long story about my condition that makes it difficult to put on this website. I wish there were a way of contacting someone at My Team Epilepsy.
@A MyEpilepsyTeam Member
I’m sorry. I still live with my parents in my 40’s and can’t work nor drive so I know how she feels
Thank you @A MyEpilepsyTeam Member . I’m praying for less seizures . So far, so good. Still have seizures but so far it’s been less amounts.
My wife and I are both noticing a difference.