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The Australian Epilepsy Project https://epilepsyproject.org.au/ is competing against 9 other projects for government funding. It is a popularity contest between illnesses for this funding
Because epilepsy is an unseen illness, it doesn't have a high profile like many other conditions and needs all the research and treatment help it can get! If you are in Australia, email your MP to support it and Greg Hunt, Health Minister as the website requests.
My previously healthy son had his first… read more
Does anyone use technical terms when talking to your doctor?
Such as aura or grand mal or partial seizures.
@A MyEpilepsyTeam Member Absolutely! After all, as we have discussed on multiple times, it is really difficult to tell when many of us get dementia because the combination of Epilepsy and the side… read more
Thank you, @A MyEpilepsyTeam Member, for another possible non-epileptic seizure, a stroke
Unfortunately, a stroke is very dangerous. Lost my wife, Sandi, to repeated strokes and finally a massive… read more
I had a grand mal seizure, at the age of 6 or 7. I had a horrible headache prior to my episode, but no aura. I was seizure free until age 12 or 13, when I experienced the same type of headache, followed by a grand mal seizure. I was put on Phenobarbital with Dilantin, which took for about 10 years. I experienced another grand mal seizure a few months later, while I was hospitalized for an appendectomy. I hadn't been given my epilepsy medication. I was put on Tegretol in my mid 20's. I didn't… read more
Thanks for the clarification Helida. ericthom3
https://www.epilepsy.com/what-is-epilepsy/seizu...
The the link above will take you to page the Epilepsy Foundation created on their site, and activated it in December 2016 to explain the new classifications of the Epilepsies and all of the epileptic seizure types by the International League Against Epilepsy (ILAE). The LIE-- which is included in every statement from the ILAE and by too many modern doctors is that these changes were made for the Epileptics and their families, as well as, the… read more
this is my devence... yes, the 'lobe' is your brain but my frontial lobe has many uses (speech, motor, talking, ect). that and when i was diegnoed, thay called it a partial seizures.
yes i have focal seizures as well as many others but latly ive only had very small focal seizures due to my vns helping me with my epilepsy
Roller coaster feeling, racing heart, shortness of breath.
Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I Was on Topomax and it had some side effects that were tolerable … Stay strong in time you might be thankful 🙏 🙏
What happens when you see an epileptologist for the time?
@A MyEpilepsyTeam Member. Check and see if your insurance may cover your state college hospital. Many colleges have epileptologists .
I've seen the phrase gelastic seizures on here I know terminology changes all the time eg grandmals=tonic clinics , absences - = petimalsl but I'm not sure what these gelastic seizures are Thanks
The HH tumor is close to the pituitary gland. It controls mood swings as well as many other things in the brain. I have had 3 surgeries and have been seizure free since my last one June 15, 2018. But… read more