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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
11034 questions
Is There Any Kind Of Work A Person With Epilepsy Might Be Able To Reliably Do?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Keeps looking like work done from home.

posted 1 day ago
Is Everyone On Here Married To The Pharmaceutical And Medical Establishment? There Meds Destroy My Quality Of Life And Don’t Stop Seizures
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Ultimately, it comes down to finding the medication that works FOR YOU. No single medication affects everyone the same way or controls their epilepsy the same way. First I was on Keppra, and that one… read more

posted 2 days ago
Epilepsy Can Have Effect On Your Memory, What Annoys You The Most When You Forget It?
A MyEpilepsyTeam Member asked a question 💭

When I have seizures I lose my memory, what annoys me is pin numbers and passwords for accounts etc.

A MyEpilepsyTeam Member

Hi,Asmus, I think memory loss is a condition we all get due to having epilepsy, we just have to do our best to overcome it, Thanks for your support 🙏, Take care.

posted 1 day ago
Why Do I Keep Getting Nauseated?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Yes, check your meds. I was put on Tegretol but hat made me so sleep almost all day so I changed back Tegretol CR (CR stands for controlled release) and I am good.

posted 13 hours ago
Does Anyone Get Pinches
A MyEpilepsyTeam Member asked a question 💭

A very sharp pinch on any part of the body for instance stomach, back, or legs

A MyEpilepsyTeam Member

I am nauseated, incontinence, headache! I love when nothing happens!

posted 3 days ago
Will I Ever Stop Having Seizures
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I think it's dif per person, I have had my condition for 51 yrs and my mom had also, she had for however long she had, but then quit taking her meds and then her epilepsy went away and no longer had… read more

posted 4 days ago
Do You Remember Your Seizures
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I don't necessarily remember the seizure, so much as know I've had one. It feels like I've got poison in my veins, for lack of a better way of putting it. Something slightly less than getting hit by a… read more

posted 8 hours ago
This Is Important But Imberisasing To Me I Have A Problem With Bed Wetting I'm 28 Never Used To Happen Anybody Else Having This Problem ?
A MyEpilepsyTeam Member asked a question 💭

I'm tense when wake up, have wicked dreams, get a headaches, when I wake up, and I don't sleep all that well but when I do I crash out, and I sometimes wet myself its so imerirasing I'm finally opening up and spilling out my last dogo God rest his loving soul he jumped on top of me when I was having a really bad seizures and tried to attack a parimetic hope everyone has a great day

A MyEpilepsyTeam Member

Toni Especially for any seizures in public. Can relax more without this worry for sure. Just let it pass know you'll be fine after too. Then be glad it did to help riled emotions settle down. Be happy… read more

posted 4 days ago
Plse Share Experience With Other Brands Of Meds, Specifically Medreich Instead Of Tegrotol And Crescent Pharma Instead Of Keppra.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I'm on name brand Keppra xr 750mg 2 at night so I don't have seizure my neurologist I had said safer then water to take. Lol. Nothing is safer then water. But it is my miracle medicine I am able to… read more

posted 4 days ago
Can You Grow Out Of Being Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

10 or more years ago someone told my parents that I probably grew out of epilepsy cause there wasn’t any seizures documented for 7 or more years. I was diagnosed with epilepsy when I was 7 years old and eventually it was diagnosed as nocturnal so I don’t really know when I have them. Unless they are possibly a grand mall seizure

A MyEpilepsyTeam Member

If you have what they call childhood epilepsy and you were diagnosed bellow the age of 10 and your current age is bellow 23 then yes there is a chance you can but once you are out of this range it is… read more

posted 7 days ago
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