Here’s a very “intriguing” question but who on here is being taken care of by a neurologist, or other type of doctor, who also has epilepsy? It just interest me sometimes that I feel like I know perhaps a little more about epilepsy and seizures than my neurologist. Mainly because I’m, (or we’re the ones) experiencing it and not them. Just think as if we had their knowledge and educational… read more
Update.... it helps if you spell it right!!! It’s Brivaracetam. I’ve found a few really useful studies.
I have a diagnosis of Catamenial epilepsy, type two, so when I ovulate. I've been on 750mg @Keppra (@levetiracetam) which has been amazing at completely controlling my seizures without making me into a zombie, but (and there's always a but it seems with anticonvulsants) it's made my anxiety and self… read more
Does anyone have any personal suggestions for how to get rid of the nausea and dizziness from my medicine. I take a lot and it can get really bad sometimes as to where I need to just take a nap to get rid of it. My doctor can’t do much it’s because of what type I take and how much. Lamotrigine, Zonisimide, and Divalproex.
Ok, maybe you guys can help me! My doctor gave me four types of medication to research for my partial (non-convulsive) seizures: tegretol, aptiom, lamictal, and vimpat. I have read about them but the side effects, etc. generally seem to be the same. Does anyone have any recommendations for one versus the others? Thanks so much for any insight you can provide!
Im constantly catching seizures everyday or every other day that I wind up in and out the hospital. The doctors keep telling me they pseudo seizures that I don't have any type of Epileptic seizures which I feel it bull crap excuse my language. I've done fell so many times, I don't know where I'm at who I am or who is any one or I don't want and one touching me are those pseudo seizures can you honestly stop catching… read more
started carbamazepine today and looking info on then started them on top of my elimpm
I had 4 grand mal seizures since last night. I don't know if it's real but I feel like my boyfriend is deliberately angering me. I hadn't had a seizure since January 26, not even the staring type or ones where I just drop. I have so much stress on me right now but I feel so angry and full of rage and like I don't fit in my skin. Does anyone else feel like this after seizures? Furious, crying, paranoid? I feel so totally alone. Nobody understands and I'm tired of… read more
If not, then check out this link from the Epilepsy Foundation New England and spread the word about it:
I’m 18 (diagnosed at 14) and this school year my epilepsy has gotten worse and I just feel really isolated with my epilepsy. Last year I mainly had absences/ focal onset impaired awareness seizures and only a few tonic-clonic seizures which sucked but I endured. But now this school year, since our mock exams, my epilepsy has gotten much worse and I’m experiencing more of all those types of seizures (especially the tonic-clonic… read more
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