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Yes, extreme heat triggers my seizures and makes my headaches much worse.
@A MyEpilepsyTeam Member , Your best chance is to have a disability attorney & your local Epilepsy Foundation can recommend one if you contact them. If you provide all your information, like the names… read more
I suffer from regular epilepsy seizures every 8 weeks, and for the 36 hours of my seizures i suffer every 2 hours a seizure being at it's worst half way through. At all other times of the 8 weeks I am fine.
sorry to hear that Robert. Hopefully one day things will ease for you.
I ran out of medicine and my doctors didn’t put in a refill until later this evening. I don’t know if should not take any medicine this morning or only the 1 out the 2 that i have.
Always call your doctor and along where you get your drugs at every time a drug needs to be refilled
I avoid all over the counter meds. They hurt more than help and sabotage the effectiveness of my Keppra
I take Lamictal XR and primidone
I am not even considering getting pregnant at the minute as I am still young but I am in a steady long term relationship and it does play on my mind a lot because I do want children in the future. I was wondering what medication the doctors would put people on when they’re pregnant? I’m currently on lamotrogine 500mg per day and it seems to be working for me. Also with hormones being all over the place when you’re pregnant what are the chances of having a seizure while pregnant?
I’m thankful every minute of every day that I had kids and neither of them have epilepsy. There’s less than a 5% chance of your child inheriting epilepsy if there is no history of it in your family… read more
Ever since I got sick and got diagnosed with epilepsy, I've become a neat freak and a perfectionist. My handwriting is what I obsess over the most. I am incredibly picky when it comes to my handwriting and worry and stress over it much more than I should. For some reason, when I write a word, sentence or letter and don't like how it looks, I feel the need to erase it and rewrite it. I don't know why. In my head I tell myself it looks fine, but it's like my hands won't listen. I take so much time… read more
Hi Mel,
My writing, memory and attention are getting worse.
I've quit electrictians job.
Keep a routine,
Stay safe
My son has right frontal nocturnal epilepsy. is on keppra 2000mg per day. just had eeg and neuro says its v active. neuro thinks son has constant activity but my son feels completely fine and says he doesnt notice anything going on. has only had 5 tonic clonic in sleep over 5 years. neuro now wants to add zebenix to his meds. son not happy because he feels perfectly fine and is refusing to take new meds. anyone have v active eeg but no obvious seizures?
My most common seizure is the Complex Partial Seizure. Meaning I’m unaware when I seizure. I also have Absence Seizures and blackouts type seizures..
The EEG reads, what ever type of seizures I have… read more
I'm going to get and try my fishing I haven't done in about 2 and 1/2 yrs
Paint, music, films
Might go places of interest not really a planner
Epilepsy is my worst night mare I wouldn't even wish it on my worst enemy. I have had it for 2 years now and I always feel strong and that I can handle it but once in a while I just breakdown. Everyday is hard and I wish they find a cure for this disease asap because I don't want to be afraid of my own body anymore.. love you all
You’re not alone
Sometimes I just lay down and tear. Or just sleep before my son gets out of school
Stress, depression, frustration. Despite the fact that I’m considered seizure free. Short term… read more