This has been dwelling on my mind for years. I don't think it will ever stop. How often do you all work, or can you work? I have a job, but I have to call in many days because of seizures. So, I don't make much. Plus, last night, my boyfriend said that "I was like a roommate who pays less than half of the bills". We were arguing about my low libido (roommate). I guess he's just had enough. Either way, I feel bad about everything. I want to be able to work more. I want to make more money. I want… read more
I was forced to retire because of my seizure disorder.
They have only figure out temporal lobes epilepsy it’s coming mainly from my left side and they are generalized tonic clonic seizures.
Hang in there and try and stay pos
This is a general question of public opinion. I myself always assumed it was, but apparently it's not at least according to Social Security in Indiana that is. I finally decided to apply b/c someone else I know receives disability do to having seizures which started after an aneurysm they also happen to work as well. So I decided to give it a try and was denied b/c epilepsy was not a disability that would stop me from working. So opinions do you agree or disagree on Epilepsy being a disability?
If you are going to apply you need to remember to list everything that is wrong with you. Side effects, down to obesity or high blood pressure etc if they apply everything!!!!! The mistake I made… read more
I’m getting pressured by my parents to find work, but I’m afraid that if I do - the disability benefits claim will be denied. Where I live now, a car is required(San Antonio), I live outside the area of public transportation and the majority of the employment opportunities are meant for people way younger than me - also those with a car and with the ability to work at multiple places during the week. How screwed am I?
This is actually for the bexar county (San Antonio area) where I live and the Austin area, so this can help others too if they have the same question as I have.
Any advice would be greatly appreciated
I'm not sure if libraries where you are do it but up in Philadelphia all libraries have free events. You may want to check out the library. Some of the events libraries here are searching for a job… read more
I was working as a PCA ( personal care assistant ) before going on social security
It was a two person job . We took care of clients in wheelchairs.
I ask this question because, I have had quite a few people questioning me weather if teaching is actually the right career choice for me because, I have many medical issues in addition to epilepsy. Though according to them Epilepsy is a ''MAJOR'' medical condition. Because, of it I get suggested that It would probably be better If you worked one-on-one with a student like a paraprofessional/aide or you can work in a library you like to read. Why don't you go for architecture your really good at… read more
I, at one time, had a job as a teacher's aide for the
Special Ed students before I knew I had epilepsy. I did pretty well, I thought until my time was up. I'd ask my doctor. I didn't have a doctor… read more
I used to be able to work, but had to stop because I don't feel the seizures when they start. I was turned down on a job because I had a light seizure and the manager saw it.
I would love to work again . But with me being on SSDI ,it too big of a risk. Working never worried me or scared me.
I've been repetitively turned down for disability. I have some type of seizures once a week, at least wether it be absent or crying. As well as go unconscious at least once a month to every 2 months. Then a grand mal every 2 to 3 months... They're all mainly random except the grand mals, they happen normally when I'm waking up. I have light and noise sensitivity to the point I'm always wearing earplugs and sunglasses. As well as migraines that are constant. No diagnosis yet
I'm still in the… read more
I’ve done a few different jobs
I worked for a company that took cake of people in wheel chairs. We gave shower , cook food, gave shower , handed out meds and other things.
I worked at a lens… read more
@A MyEpilepsyTeam Member , Your best chance is to have a disability attorney & your local Epilepsy Foundation can recommend one if you contact them. If you provide all your information, like the names… read more