My son is switching from trileptal to zonegran currently. He just started having issues sleeping at night the last week or so - he is now taking 150mg of zonegran at bedtime and is weaning off trileptal (now at 600mg AM and PM). Will be checking blood levels of both the end of this week before our next decrease of trileptal.
Has anyone had insomnia on zonegran? If so, did moving it to AM help at all?
Thanks!
I have been on Vimpat and Zonisamide for about ten years and I’ve had insomnia as long as I’ve been on these meds. I’m demanding a medication change now
No insomnia. I’m sleeping 8-9 hours daily yay! It helps to have all media -including my iPhone - in another room.
That’s so cool
I agree varies person to person just like medicine. I've been on at least 10 meds and some kept me up hard to sleep, and some makes me very tired.
Levetiracetam is my current medication/treatment for seizures but I can’t stand the side effects, such as insomnia, loss of appetite, irritability, and worsening depression.
Thanks so much again Becky. Your support and advice have been invaluable as I embark on this journey of recovery.
I often go on a 2 week spree without bearly any sleep. Half an hour here, maybe an hour there, and then after 2 weeks I totally collapse. Besides these 2 week sprees, I sleep very little. I am always tired and without any energy.
I to have insomnia. I just try and make sure I get at least 8 hrs of sleep. If i sleep a little longer that day , I probably needed it. Sometimes if I wake up early, I may try and sleep longer… read more
Almost every night, I struggle to get my off to sleep. I am always up half the night feeling over tired but cannot sleep or get into a comfortable place. I have tried, counting, music, medicating, do actives til nodding off etc. Nothing seems to work, I just want to use sleeping pills now, I am struggling to get myself through the day without feeling so tired.
am I the only one? do you think it is linked to our epilepsy?
I do suffer with anxiety and depression badly that doesn't help.
Hi @A MyEpilepsyTeam Member, you can actually stream audio to some hearing aids. For say the Oticon Bluetooth ones, you can stream anything and even use them for calls. For others, there are some… read more
My neurologist told me that I could have difficulty sleeping due to my medications and my overall condition. As I’m sure you all know, lack of a good night’s sleep will trigger seizures the next day.
I’m wondering if any of you have difficulty sleeping and if so what prescription meds or Over the Counter pills you take for this?
Thanks!
Guy
I’ve had trouble sleeping since my teens? Today I stil have insomnia . It’s very hard to sleep , when my mind won’t SHUT up. I’m usually up until between 9 and noon. Once in awhile I’ll be up for… read more
@A MyEpilepsyTeam Member... Great to hear!