I started having seizures when I was 10 years old. I’m now 40 and I still can remember a lot of big and small things up to the point my seizures started which was before I was 10. From age 10 on though my minds blank
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I’m the only one in my family history to have seizures. My head injury was actually before I was 2 but I still had a great memory up until the point I started having seizures… read more
My Family definitely and out of necessity you have to inform people that you work with most of it can bring you a little closer and look after a family feel. ericthom3
I had a conversation with a few people here. We all have had difficulties speaking. Getting confused, slurring words, dyslexia getting worse, not being able to put sentences together properly, etc.
If that’s a seizure, what type of seizure is it?
Or is it more likely just side-effects of medications?
Thanks.
Thank you for the hug.
Something some said got to me. Not all forms of epilepsy make tou loose consciensness. I am always alart and and aware of several of my triggers. My sezuires are either absent, mind staring or simple/conplex jerks (like a cold chill).
I have complex partial seizures. My neurologist and I have talked about my license as I have brought it up. He sees no reason to revoke my license and my diagnosis does not require them to be.
Anyone else still have their license?
I am hoping for my first year. It's been 10 months.
Since having my first several seizures a I've realized that there are gaps in my memory of single events going back maybe 15 years. I'm very sad when my husband or friends are talking about an event from the past and then ask me if I remember: when we went there... what we did ... etc. Sometimes I recall SOME of the event after discussing and getting a few details about it.
There are also events from the same time span that I DO recall
In my research I (finally) discovered a type of… read more
I have temporal lobe epilepsy with mild cognitive impairment-amnestic kind-multiple domain. I too go through exactly what you described. It’s embarrassing and I feel stupid bc of it. I can remember… read more
Since it started
I had a seizure more than 2 days ago and still don't think I can do much of my day's work. Just worn out and feeling awful. This is always the post seizure fatigue.
Someone said, it's about discovering our new normal. Its different for everyone. I'm definitely sleeping a lot more. Naps, in bed til 7or 8am. I'm typically up and ready to go around 6:30 or 7...naps… read more
If you enjoy reading, a good book to help you with this is “How to be comfortable without being uncomfortable” by Ben Aldridge. Remember positive thoughts generally lead to positive outcomes 👍❤️🙏
Hi
- I feel like I should be working and doing things that I did prior to my epilepsy
- I regularly feel like I shouldn't be on disability and that I can do everything.
- My family and my Dr have been telling me that I can't work or do most things on my own especially with my myoclonic seizures as they have caused me to burn and cut myself when cooking, dropping things etc...
- I used to be a nurse and don't see myself as being disabled. Even on here I see and think that there are people… read more
Hanna, your I relate to this so much! I feel and think others think I can do the same things I did before. I was the Executive director of a homecare agency and lived what I did. I miss it terribly… read more
You see people who make fun of people with grandmal seizures or use them in their pranks.
So how would you go about making them understand what its like to live with epilepsy and what its like in those moments? When i think about how i would go about i can honestly say I dont know and I dont know if i could ever make them understand because they dont walk in my shoes or anyone elses shoes with epilepsy
https://mail.google.com/mail/u/0/?ui=2&ik=c... 53024&ser=1
I just found this from the Epilepsy Foundation. It first includes First Aid for Epilepsy, then a booklet for Teachers about Epilepsy. I… read more