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I'm in search for one. Anyone have one for themselves?
Samantha , remember , don't forget what I told you as well
You may not live in Florida , but , the state you live in should. have a Department of
Children & and; Families you might also get in touch… read more
I know personally loud noise triggers my seizures and at all hours of the day the tenant above me stomps, drags furniture across their floor/my ceiling, a child running and recently began driving a large box-truck that has the extremely loud "beep beep" sound when reversing. I complained because all these sounds are affecting me. The dilemma is that before I even signed the lease I made sure to inform the owner
"Sure Sarina, I can make that happen, I'll lease to someone compatible, a… read more
I also think moving should be last resort. Triggers seizures big time
How does your family deal with your post seizure emotions? My wife keeps asking me what’s wrong or why are you upset but when I tell her it’s nothing she’s doing and it’s just normal post seizure she gets upset. She’ll say “it’s all in your head” or “it’s been 3 weeks get over it” or “do you not care how I feel”.
When I first started having seizures, my dad told me that I was angry and would raise my voice, not realizing what I was doing.
My son would tell me that I would break down and cry for a while then… read more
I was just wondering what other people do after they have had a seizure to make themselves feel better. Everytime I have a seizure I use can't believe how tired it makes me and I hate it, I hate feeling ill and helpless lime this. I live alone so just end up spending days inside not seeing a soul and just sleeping. I get really down as there's nothing I can do and not really anyone I can talk to.
My decision to do something depends on the kind of seizure I have. If a seizure is long and feels strong then I usually stop doing what I was and do something that takes very little effort, ex. lie… read more
Can you live by yourself & have a response dog? What other options are there?? I need answers not hugs.
Hugs are nice but answers are what I am looking for.
If you have the confidence to living , working and managing yourself , then you don’t need a care giver.
I agree with Peter
Independance is freedom
Being told how you must live
can feel like imprisonment and being housed with severely disabled people is very hard on your self worth.
It's a perfect… read more
anyone know how to get someone to back off if thier giving you a hard time about your epilepsy an related issues . My professor feels like I getting one over on the systems and i feel is riding my ass
Yes file a complaint , he is just ignorant .
My seizures are from my anaplastic astrocytoma brain tumor and nerve damage had surgery 1999,... 33 rounds of radiation and that 15 rounds of chemo been a long journey.. so far radiation has aged my brain 30yrs so I get to experience old age I'm 56 with an 86 Year old brain having to admit I'm disabled and giving up driving was the hardest thing
Oh god my son just got the vns in Dec 2023 I hope I didn’t make a mistake for him after reading this he’s physically 31 but mentally 4 with autism too and I swear that device doesn’t help him either
I worry about others. I am told by them don’t worry!
I’m 26 and live by myself, but go to my parents house every couple weeks. I’m only out with someone when my mom takes my shopping and when I’m league bowling on Monday nights. This makes me more uncomfortable and afraid of having a seizure from depression.
@A MyEpilepsyTeam Member hi Jeffrey, it would be hard for me just because I have trouble a little trouble taking care of myself. I had to watch my parents dogs a few months ago at their house while… read more