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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Status Epilepticus
A MyEpilepsyTeam Member asked a question 💭

My 5 year old daughter was diagnosed with epilepsy last year. She's been having seizures every 1-2 months since then. But when she has a seizure, it never stops on its own. Every time, she has to go to the hospital and receive diazepam injection. Is there any other person with similar conditions? Will it get worse with time? I'm so worried.

A MyEpilepsyTeam Member

I've never dealt with a kid with epilepsy just myself. See if her doctor would give you a concentrate (liquid) RX of diazapam or lorazapam and educate you on the dosages for her seizures. It can go… read more

I'm Afraid Of The Side Effects Of Epilepsy Meds. Am I Making A Mountain Out Of A Mole Hill?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No, but its a matter of finding meds that suits you, and finding that safe spot. I say people need to live there lifes to the fullest. Just don’t do stupid things that can endanger others, like not… read more

Anyone Having Positive Results Microdosing?
A MyEpilepsyTeam Member asked a question 💭

I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...

A MyEpilepsyTeam Member

The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊

Covid Shots
A MyEpilepsyTeam Member asked a question 💭

Hey Guys,
I haven't been on for a while and I'm sure it's already been asked but....
How many of you have had the Covid-19 shots (and which one and why).
Also, my doctor wants me to get Pfizer along with my partner,
but by the time he gets it his work would have started and he won't because he hasn't had the shot.
Again, we can have the Astra in a few days and everything would be alright.
I'm very confused,

A MyEpilepsyTeam Member

I am alright I had the Oxford Astra zenica an I am perfectly alright they are saying for the booster we might get the one the doctors are asking you to have they have studied having them mixed first… read more

What Type Of Seizures Does The Vns Implant Helpful For?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

When I had the VNS , I too had trouble with keeping my voice. But, I stopped feeling that and my voice came back.

When We’re You Diagnosed?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I was six and a half and now I am sixty and a half. My husband has one primary interest-Don't overdo it.

I Saw A Post On Here Saying They Were Looking For 2 People To Speak Up In A Short Documentary. I Can’t Find The Post That Was On Here :(
A MyEpilepsyTeam Member asked a question 💭

Deadline is December 19.. to have my email sent. Please if anyone knows where to find the post or the email . Let me know Does anyone know the email for the epilepsy casting call? I saw a post on here saying they were looking for 2 people to speak up in a short documentary. I can’t find the post that was on here :(

A MyEpilepsyTeam Member

Hey if you find it send it to Me Too!