I have a small cooler with frozen water bottles that I change daily, add wash cloths and a touch of water. Too much water or towels cause the cooler to get stinky. I’m on the go similar. A frozen wash… read more
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too
It most happens early morning, im having a seizure, losing my vision, headache, sickness, dont realise it happening until i wake up. It like im unconousious because i dont know where i am for a few secoud. Im gone completely blind so i dont know what in doing until i have to shout for one of my parents. I dont always shout i do tend to go through it on my own.
I had only 5-8 second events while asleep the time before this EEG Cap. They did not tell me how long it was yet, however. Will try to figure out a combination of drugs and dosages to stop them all.
Had seizure that involved frequent vomiting and in and out of consciousness. Was in seizure 6 hours which is the longest I've ever heard of. Luckily I was in emergency 5 of those 6 hours.
Obviously, the fact that we have friends on here in just about all, if not all, of the time zones on the planet, thus it would have to be smaller gatherings by region to start. After all, it is around 1:30 pm EST here in MA right now, but it is 6:30pm in London and Tuesday 5:30am in Sydney.
It would be helpful in getting to know friends that we cannot meet with locally if we could use ZOOM to meet with at least some of them.
What do you think? Are you interested?
Hey John, thanks for the invite.
So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more
read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling
Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?
I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate