I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
I had to have 2 EEGs. First one was an inpaitent EEG for 3days went no where and the hospital staff and doctors were rude as hell to me
Second on was at a diffrent hospital for only an hour and they got excatly what they needed shortly after that i was diagnosed with FLE and TLE epilepsy was put on keppra and then topamax but had to come off of those and currently on Lamictal. My offical diagnosis is Primary Generalized Epilepsy
I recall having like 3 or 4 absence seizures in a row every few… read more
I honestly don't know because at the end of my first appointment, my neurologist had me hooked up to an ambulatory EEG for 48 hours, thus I do not know at what time during that period the ambulatory… read more
If/ I may ask, should you not be comfortable answering by all means. How has everyone felt after their diagnoses? Was it hard to accept?
I've been without a neurologist or epitologist for over a year do to the COVID crud my primary Care has like myself been trying to get me into a neurologist. But as of yet no goal.
This is my biggest problem in regards to neurologists/epileptologists. I was seeing a local neurologist in a small town and I couldn't see where he was doing me any good. I'd go in. He'd look at… read more
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
Hi ya it s not easy working with epilepsy I take my hat off to all them that do like you say it s when you're I'll and having to take time off bless you never give up ☺️