Quick Links
Resources
About MyEpilepsyTeam
Powered By
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
When I was working , I was only able to work 2nd and 3rd shifts. I was never able to wake up for early morning shifts. First time I tried to work the first shift , I was fired in 3 days , because I… read more
Not being believed is worse than a seizure. I hope your days are sunny and peaceful.
I just wondered if Epilepsy could have increased my chances of getting Shingles seeing that they are both nervous system / brain related. I noticed a burny itchy spot in my cheek a few days ago. Its getting bigger. The rest of my right side of my face started itching too. And the back of my neck and down my back. So walked into the pharmacy today after church to get an antihistamine for this strange "allergy" I have. And the pharmacist told me it's not an allergy. IT'S SHINGLES! No wonder I've… read more
I am having shingles on my right side right now. I also had them when I was a teenager. I've had three seizures since I've been aware of the shingles on my back..I feel really out of it and hurting… read more
My grandson has been one month seizure free until last night....he had a typical seizure for him but with vomiting. Had anyone else experienced this?
I vomit after, quite often.
Im 4 months post op- craniotomy, and it seems like i have a dent in a portion of my head where the bone flap was taken out. Is that normal and will it forever stay that way, or will it "fill in" with time? My doctors didnt really answer me last time i asked back in november, they probably didnt understand my question.
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?
Thanks, Kathryn13.
Just found out I am anemic, very low red blood cell count. The thoughts from Dr. is that chronic use of antiepileptics (40 years worth) is the cause. I hadn't been made aware of this possible side effect before.
I run my own landscape business. I started to feel tired at the end of the season and realized that my iron level was low. Started taking ferritin and it made a huge difference
I've had epilepsy for 30 years. Simple partial seizures with no loss of awareness, but I've had a few complex partial seizures. I have on average one or two simple partials every month but sometimes I go for 3 months seizure free. The last complex partial was a year ago. I have a strong and lengthy aura on every seizure and my eye twitches strongly.
I've had quite a few neuro docs and seems like they all want me to take different meds. I've been on Trileptal and zonisamide for about 2… read more
I would ask to see a different doctor at the office, and file a complaint. If there isn't another I would seek a new neurologist. With regard to the driving you may want to check with the local laws… read more