Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
I seem to be unable to stay awake when I take this medication. Has anyone else had bad side effects?
I've had it but they only gave it to me for four days. Apparently its a very strong Med.
As a child, I took Phenobarbital at night, and Tridione in the daytime. Anyone else heard of this? My new Dr.'s give me funny looks, but I know what I was taking. I was 17 when I stopped taking it.
I take 145 mg of phenobarbital.
116 at night
On it 29 years
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Anyone have seizure reactions to watching a 3D movie? I sure would like to watch Thor Love and Thunder in 3D but not sure if my brain will react. Thoughts please?
I think the type of movies like being a stressful or comedy might have something different each time too!
Earlier today, a rain storm came through. Maybe a minute before this, something happened, rather not discuss it. Thought about brain tumors and intracranial pressure. When the barometer drops, ICP is higher than the pressure outside of the head. Had brain surgery, and brain tumors have the same effect- the tumor presses on the brain. Any experiences with sudden changes in air pressure?
Me too. Exactly my experience, every word. Even what my neurologist said to me this morning, exactly word for word. He said he had deep experience with epilepsy for many years and never heard of air… read more
Due to my 1st son being stillborn in 2006 i began the seizures, never knew why, never had them before then. Now in the past 6-8 months ill only have maybe 1 a month but it comes early in the mornings while im asleep
You may want to talk to your Neurologist or Epileptologist . You may need to have an a EEG and MRI . You may have another area in your brain that your seizures are located .
I had a a EEG and MRI… read more
My neurologist wants to put me on EPIDIOLEX. Does anybody have any experience with this medication. I would love to hear your reviews and experiences. Good or bad.
@Churcham. I can tell you from professional experience (14 years doing interlibrary loan work for Massachusetts General Hospital--and getting at least article, chapter, book, etc. request filled for… read more
Has anyone herd of a infant of 14 days old start with seizures and they were so severe they damaged the brain and at 29 days Sally Lynn died. The seizures were resistant to Pentobarbitol, phenobarbital, Kepra, kedamine, fentonal, and Topamax. She was on all of these at one time and finally they were putting in a new arterial line and she died 1.5 hours later. Has anyone herd of this?
I am sorry but don’t give up hope on getting a answer to your questions. You are in my prayers and I hope you get those answers