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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Withdrawal From Clobazam
A MyEpilepsyTeam Member asked a question 💭

As part of my little medicine cocktail I'm on 20 mg am ,20 mg am of clobazam ( Onfi ,Frisium) I'm still awaiting contact from my new neuro.I decided to reduce the night time dosage to 1 tablet .I know it's a benzodiazapine & strong Anybody had problems weaning themselves of this ? I don't intend to reduce it any more TIA

A MyEpilepsyTeam Member

I din’t have Onfi but do have friscium!

Lamictal Vs Tegretol For Left Temporal Lobe Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

Has anyone taken one of these meds for left temporal lobe epilepsy, what have been your side effects? Have you had success?

At the moment I am on Keepra 1250mg and Clobazam 20 mg (25 mg around my prd) This year I have had an increase of complex partial seizures (from 1 a year to 3 a year); I normally have about 5-9 simple partial seizures a month; around my ovulation and period

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I am on the same combo except not topiramte; wondering if that helped in anyway?

Has Anyone Had Any Trouble With Sporadic Behavior Issues, Seemingly Coming From Nowhere, While Taking XCopri? Anxiety Heightened!!
A MyEpilepsyTeam Member asked a question 💭

He is lashing out, throwing, etc. This is taking a dosage over 50 mg. Signs began 5-7 days after going up to from 50 mg to 75mg to 100mg.
We, neurologist and I, are slowing weaning him back down.

A MyEpilepsyTeam Member

Generally speaking, every epilepsy med should be a weaning off and on process. Also feel it's safest to do this one drug at a time, if possible, because how can you determine side effects and… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Does Anyone Here Take The Medication Briviact?
A MyEpilepsyTeam Member asked a question 💭

I'm about to start taking it. It's a fairly new medication and I'd like to know more about it

A MyEpilepsyTeam Member

I'm glad the Vimpat and Brivact are working for you @A MyEpilepsyTeam Member. They're working for me too

Going To The Neurologist And Increasing My Depakote - 9/29/2014
A MyEpilepsyTeam Member asked a question 💭

I am on three medications: 1500 mg of Depakote, 400 mg of Vimpat, and 800 mg of Tegretol. Now I am wanting to add 500 mg pill of Depakote.
Standard YouTube License

A MyEpilepsyTeam Member

those are the medication never work for me i had side effect on me too. i don't take them no more.

My Medicine Listing Per Day, I Believe Is Too Much !
A MyEpilepsyTeam Member asked a question 💭

My Daily Medicine List
1- Dilantin ((Brand Name) caps 400mg. Per day
2- Lamictal (Brand Name) 700mg. Per day
3- Verapamil 80 mg. Per day
4- Zone gran 400mg.per day
5- Dilantin (chewable) 50mg. Per day
6- Tranxene 7.5 mg per day
7- Singular 10 mg per day (Asthma pill)
8- 2 puffs Advair 2 times per day (Asthma)
9- Sleep with BIPAP at night (improves sleep)
10- As needed to stop seizures 2mg Lorazapam
(Which is only given when I have clusters
Or a longer than normal seizure,… read more

A MyEpilepsyTeam Member

Wolf2677, I am 59 almost 60-10/10/17. For me its been alternating medications and dosages. So far we haven't discussed surgery. Prior to my marriage seizures were about six weeks apart. I got… read more

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

When You Were Told That Medication To Assist You, Did You Choose Surgery Or Alternative Solutions? How Well Did It Work For You?
A MyEpilepsyTeam Member asked a question 💭

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more

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VNS Or RNS Complications
A MyEpilepsyTeam Member asked a question 💭

Has anyone that has received an VNS had increased seizure activity? My downloaded scan shows activity up to 60 seizures per day and I thought the VNS was suppose to help but it’s not so far.

A MyEpilepsyTeam Member

Please listen to Dr bout VNS working or not. Tried one bout 5 years ago when it didn't help reduce my seizures it was removed. A simple surgery either way. To not trust Dr is wrong for any medical… read more

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Learn more about VNS Therapy Read more >