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Has anyone reduced their medication and been put on Cenobamate instead?
I am thinking of trying it and want to speak to my neurologist on my next review. I am weaning off pregabalin at the moment.
I have just been put on ONTOZRY.
Can some people help me out and tell me about it
Has anyone put on xcopri and seen reduction in seisures ?
What are your thoughs of RNS and epilepsy surgery, are worth the pain?
My doctor is recommending cenobamate for my son, who is 13 year old. He has focal onset aware seizures and take Oxtellar XR. He has tried Keppra and Banzel and both have aggregated the seizures. Does anyone have experience with cenobamate ? Is this too strong for a kid ? What symptoms do you observe ?
Seizure control should be your first priority. If side occur then worry bout them as you did with previous meds. Dr knows his seizures best & how meds will affect him. My mom 50 years ago if others… read more
My Nero wants me to go on xcopri while decreasing my onifi has anyone taken or is anyone on this drug and had any experiences with it and what kind of side effects if any you had on it.its a fairly new drug A.K.A. cenobamate any input is helpful. Thank you.
Great to hear! And with the medications gone, at least some of the side effects are gone.
How is Xcopri? What are side effects?
I don't want to come off of phenobarbital
I'm happy to hear she is getting better
Who’ve taken this and how do you feel? Doctor just put me on this but she said i might hve a rash.
I almost went through this entire month without a seizure since starting this new đź’Š & getting the right
dosage setup (frustration/ stress piled into a seizure recently), but I will keep it 💯 & 🙏🏾… read more
A relatively drug has been suggested to me to swap out and replace topomax I was wondering if anyone is or was taking xcopri, ( generic band name, cenobamate) and what has it been like the side effects and dose of work well with your sezuires. Mine are partial complex seizures. I haven't found out much about the brand name as I have to do more research but with the generic name it says it shouldn't be taken if you have a history of depression and I do and still have depression. Also a drug… read more
I didn't know about onfi interaction ty, just started xcopri, very, very strong, been on 3 months, extreme aem side effects. My one I was a miracle
I want to know one more time before I make my final decision before going into my neurologist visit this Aug 6th 2022 about the information people who have taken or are on this medication xcopri have seen in sezuire reduction and what kind of side effects from uncommon to most common you have experienced and any unusual side effects that have happened when taking xcopri and if or any side effects bit had with the medications you we're on . I now take brivact and topiramate an clobazam. If… read more
Sorry to hear that David! It is even worse that your doctor does not already know this because the doctors and pharmacists has the program and databases to make sure to not give a patient medications… read more
He is lashing out, throwing, etc. This is taking a dosage over 50 mg. Signs began 5-7 days after going up to from 50 mg to 75mg to 100mg.
We, neurologist and I, are slowing weaning him back down.
Generally speaking, every epilepsy med should be a weaning off and on process. Also feel it's safest to do this one drug at a time, if possible, because how can you determine side effects and… read more