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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "i want to change my user name when i try it sends me to facebook i log in via email so why does it ask for fb login thanks"

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Facebook Log In

Facebook Log In

When I want to change my profile info the site wants my Facebook login. Not sure why it's asking for that. It may be something I forgot but would rather not use my Facebook password.

A MyEpilepsyTeam Member said:

locations are in 'setting'... and it is on facebook only. sorry about that.

posted 23 days ago

Who Would Be Willing To Be Part Of A ZOOM Meeting(s) To Have Real Time Discussions Among Friends To Get To Know Each Other Better?

Who Would Be Willing To Be Part Of A ZOOM Meeting(s) To Have Real Time Discussions Among Friends To Get To Know Each Other Better?

Obviously, the fact that we have friends on here in just about all, if not all, of the time zones on the planet, thus it would have to be smaller gatherings by region to start. After all, it is around 1:30 pm EST here in MA right now, but it is 6:30pm in London and Tuesday 5:30am in Sydney.

It would be helpful in getting to know friends that we cannot meet with locally if we could use ZOOM to meet with at least some of them.

What do you think? Are you interested?

A MyEpilepsyTeam Member said:

Actually, I can host Sam. What I would like you to find out the names of all who have said they are interested and when they are able and willing (including time zone) to take part in the ZOOM.

read more

posted 10 days ago

Prescriptions

Prescriptions

What are peoples thoughts about ordering medication online through an online pharmcy, but they still go through your gp to approve it just at this time i cant get to the chemist so i ordered my antidepressents online from this website called pharmacy2u.. if they come in time when they said they would i might get the rest of my meds on there?

A MyEpilepsyTeam Member said:

I use to get my Meds that way and it worked fine! I now use my insurance
And they send 3 month supplies and it’s a 0 copayment. Either way
You don’t have to leave home!

posted about 2 years ago

Focal Onset Seizure

Focal Onset Seizure

I am a mom of a 13 year old who is diagnosed with Epilepsy - focal onset seizures when he age 7. His seizures last within 25 seconds and he is generally aware when they come n go. He also gets Auras before getting the seizure..not always but most of the time. He was on Oxtellar XRwhich helped him to be seizure free for 2+ years after which on doctor's advice we got him off meds. He got the seizures again in few months and we put him back on a lower dosage of Oxtellar XR - 300 mg AM and PM. With… read more

A MyEpilepsyTeam Member said:

Thanks Shannon. How many meds did u try before controlling the seizures ?

We have tried 2 so far and both have caused more damage ...just curious

I have saved ur email..how do I delete the message… read more

posted 3 months ago

How Many Of You Have Reached Out To The Epilepsy Foundation (or The Like) And Ask Them To Spread The Word About This Site?

How Many Of You Have Reached Out To The Epilepsy Foundation (or The Like) And Ask Them To Spread The Word About This Site?

Please tell me that I am not the only one urging them to tell everyone with Epilepsy/Seizure Disorder about this amazing site.

It has changed my life to come here and make friends who know exactly what it is like to have a seizure. Don't you want everyone to also receive this gift?

A MyEpilepsyTeam Member said:

I know about this site form epilepsy foundation It's a very nice site

posted about 2 years ago

Changes In Sezuires Before

Changes In Sezuires Before

Is it me ageing or the medication Waring off or time for a change or the progress of my epilepsy and having epilepsy and my sezuires for so long . has anyone had auras that tell them that a sezuire is coming on or a warning sign and all of a sudden the next day thier just gone and you don't have the auras that tell you you're about to have a sezuire. I know when I got my VNS my sezuires Turner from daily and weekly and monthly to nocturnal whenever I go to sleep at night and when I take a nap… read more

A MyEpilepsyTeam Member said:

Where are you located

posted about 7 hours ago
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Facebook

Facebook

When i first signed up with my epilepsy team i used my facebook account to login. So now i concerned, will thinks i post or questions i ask be posted on my facebook?

A MyEpilepsyTeam Member said:

Very helpful thank you very much

posted almost 7 years ago

How Can The Veterans Of This Site Do More To Help The Newer Members To Get Answers To Their Questions?

How Can The Veterans Of This Site Do More To Help The Newer Members To Get Answers To Their Questions?

As I have discussed with some of you, I try to send a greeting and add all new members to my team to help to get answers for them. However, there are a lot more of you have personal experience with implants like VNS, RNS, etc. and various brain surgeries, versions of the Keto diet, use of other alternative treatments and anticonvulsants and the like that I do not personally have.

How can we improve things for them even while we consider the meetings and the likes for some of us?

The… read more

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member I am sorry to hear all of the additional effects that you have had as a result of the surgery, the stroke, etc. I hope that you have more of the good days and less of the… read more

posted 4 months ago
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Do You Know What The Epilepsy Foundation Or Its Equivalent In Your Nation (or Even What Your Regional One Does)?

Do You Know What The Epilepsy Foundation Or Its Equivalent In Your Nation (or Even What Your Regional One Does)?

While I have discovered while looking for friends for the Epilepsy Foundation in Canada and Australia, I have not only found that they have a different name in those nations. And there are also other organizations in those nations which strictly focus on getting charitable donations to pay for the research into Epilepsy research there. I have not yet looked at other nations. Do you have the Epilepsy Foundation or is equivalent in your nation and know its name and how to contact it? What do… read more

A MyEpilepsyTeam Member said:

Thank you

posted 5 months ago

How Many "Cold Calls" Do You Get As Far As Car Insurance And You Don't Have A License?

How Many "Cold Calls" Do You Get As Far As Car Insurance And You Don't Have A License?

I just got one tells Me they're My insurance company and asking Me info the type of car. They would have all the info before calling. I just told Cold Call...I don't drive...I don't have a license...I have Epilepsy!... She said that She was sorry 😉

A MyEpilepsyTeam Member said:

I ignore the calls and laugh when I listen to the message they save on my voicemail about going to close me car insurance file unless I call soon. And then I simply delete it. I know I can keep… read more

posted over 1 year ago