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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "does anyone have trigeminal neurologia or familiar with it"

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Can You Set Up A New Prorogram

Can You Set Up A New Prorogram

I have an idea for a new program called Epilepsy Dating. Why not create a program so single epileptic members can meet others? They can search to meet a person of the same or oposite sex, provide a profile , photo and message. Many epileptic members have a hard time living alone.

posted 12 months ago
A MyEpilepsyTeam Member said:

Can You Set Up A New Prorgram
Pay no attention to people that are rude. They think they no everything. I think it a good idea. At less they would no what the others going through.

posted 12 months ago

Does Anyone Have Transient Epileptic Amnesia?

Does Anyone Have Transient Epileptic Amnesia?

posted 5 months ago
A MyEpilepsyTeam Member said:

Not unexpected after the pins in that they are stiff. PT will help things improve.

posted about 1 month ago

Did You Know That Epilepsy Is Classified As A Neurological Disorder Rather Than Mental Illness?

Did You Know That Epilepsy Is Classified As A Neurological Disorder Rather Than Mental Illness?

I certainly did not know this until a few minutes ago --when I was researching what international medical committee decides why the label of "mental illness" is used rather than "mental disability" for those that are not labeled as mental disorders (and I did not even know that the mental disorders were not listed as a sub-group of the overall group known as mental illness rather than being in a separate category.

https://www.ncbi.nlm.nih.gov/books/NBK20369/

Did any of you know about this… read more

posted 9 months ago
A MyEpilepsyTeam Member said:

Hi Margery, As an Australian, I have always had Gran mal epilepsy since a toddler &?as I grew up, every neurologist would say to me ‘how’s my neurological world’? With what i knew & my late husband… read more

posted 6 months ago

Can You Feel It?

Can You Feel It?

I've noticed that when I have a seizure, I actually feel like my brain is being "electrically shocked" in specific areas. This is not the case for every seizure I have, nor every type seizure I have. I have noticed it has been pinpointed to about 3 seperate locations in my brain. I am wondering if this is normal or a common event to have a sense of feeling where the seizure is occurring? I'm not even sure that is technically what happens but it feels as if I can tell where in my own brain the… read more

posted 10 months ago
A MyEpilepsyTeam Member said:

When I had seizures, it felt like someone was pulling on my legs. I didnt have anything in my brain, I would get light headed and I would fall into a seizure, wake up and feel like crap

posted 10 months ago

Dose Anyone Take Xcopri And Had Any Problems With It. Also Know As Cenobamate

Dose Anyone Take Xcopri And Had Any Problems With It. Also Know As Cenobamate

My Nero wants me to go on xcopri while decreasing my onifi has anyone taken or is anyone on this drug and had any experiences with it and what kind of side effects if any you had on it.its a fairly new drug A.K.A. cenobamate any input is helpful. Thank you.

edited, originally posted 10 months ago
A MyEpilepsyTeam Member said:

I’m on it, plus 3 others, and I only take it at night. It seems to help with my nightly seizures. I’m happy to be off Onfi. I’ve been on that one too but it didn’t seem to help me much. I hope it… read more

posted 6 months ago

Can Others Who Do Not Have Epilepsy Really Help And Understand?

Can Others Who Do Not Have Epilepsy Really Help And Understand?

I was diagnosed with epilepsy in 2012. My seizures are complex partial seizures. Complex partial seizures seem to affect your emotions, reactions and focus. The medication, along with a good neurologist has helped me a lot. My seizures are under control now. I say now because seizures never seem to be under control for the long term. Medication has to be changed, increased, etc. It is frustrating. All of my life, I have had a hard time making friends and have felt awkward socially. I think… read more

posted 9 months ago
A MyEpilepsyTeam Member said:

I was thinking of Alanis Morissette. Drunk but I'm sober

edited, originally posted 6 months ago
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I Thought I Had A Mini-stroke Toast Burning...Woke With Worst Hangover Feeling. Unrelenting, Lasted 5 Days. Sound Familiar To Anyone?

I Thought I Had A Mini-stroke Toast Burning...Woke With Worst Hangover Feeling. Unrelenting, Lasted 5 Days. Sound Familiar To Anyone?

posted 12 days ago
A MyEpilepsyTeam Member said:

Good advice K we all need to see how others react just to compare them. We can exchange our experiences right here. Newbies to epilepsy need sites like this to really understand & deal with seizures… read more

posted 7 days ago

Eleptologists

Eleptologists

Mostly for UK people ,but US citizens feel free to chip in.In the UK ,do we have eleptologists or do they just exist in other Parts of the world ? Posted this 6 months ago as well

posted about 1 year ago
A MyEpilepsyTeam Member said:

Did you contact the Epilepsy Society in the UK to ask them this question
https://epilepsysociety.org.uk/

I know that the Epilepsy Foundation of New England working with some other groups is trying… read more

posted 7 months ago

Has Anyone Been On Vimpat? If So How Long And Was It Succesful?

Has Anyone Been On Vimpat? If So How Long And Was It Succesful?

I’ve been on Carbotral since i was 8, and trokendi since i was 14-15. I was hospitalized in the past 2 weeks to study my absent seizures off all medications, because i normally have auras only when medicated, until the padt year, ive recently began having absents again also. The doctors tested one medication that was unsuccessful while i was hospitalized, before testing Vimpat over a 24 hour period, and then i was released. I’ve been out for nearly 2 weeks now, and i haven’t had any seizures… read more

posted over 2 years ago
A MyEpilepsyTeam Member said:

I was on Vimpat for several years, and it did work for a while, then my body must had gotten use to it until it must had stopped working for me. I'm now on Briviact and it seems to be working for me… read more

posted 6 months ago