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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "do your loved ones support you on this site"

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Lamictal Titration And Fatigue
A MyEpilepsyTeam Member asked a question 💭

Hi All
Has anyone been on Keppra and had Lamictal added? My son was fine up until last week he was at 75mg twice a day of lamictal and seemed to get a bit tired the second week after each dose increase but last week he was very tired and ended up missing school. He doesn’t seem to be getting any better his energy levels are so low. As of today he is at 100mg twice a day plus the usual 1500mg of Keppra twice a day. When I spoke to the epilepsy nurse at the start she said that Lamictal usually… read more

A MyEpilepsyTeam Member

Hi I’ve had epilepsy for 35 years after my first son was born. It was the stress of carrying the baby brought it out
I had several different types of medications but unfortunately none of them them… read more

Are You New Or Otherwise Frustrated With How To Use This Site?
A MyEpilepsyTeam Member asked a question 💭

If so, then answer this question. And ask me and other veterans of this site how we can help you in your response to this question that I have posted.

In the meantime, click on this link to get the help that you need on how to do things on this site.
https://myhealthteams.freshdesk.com/support/home

A MyEpilepsyTeam Member

This link takes you to the page on this site that provides a lot of the answers:
https://myhealthteams.freshdesk.com/support/home

Are You Skilled In The Use Of ZOOM, Skype, Google Meet, Or Any Of The Other Meeting Sites/apps That Offer Free Meeting Options?
A MyEpilepsyTeam Member asked a question 💭

We are looking into allowing expanded options for conversations (live free meetings) with friends on this support site. However, we need more friends who are comfortable with the various meeting sites and their apps. We not only are looking for hosts in the range of time zones of the Earth that we have friends scattered in but also people who are skilled in explaining how to get on to the meetings and use of the features to the friends on here are non-techies.

The idea is to allow live… read more

A MyEpilepsyTeam Member

I hope

How Do I Remember Things From Class?
A MyEpilepsyTeam Member asked a question 💭

So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more

A MyEpilepsyTeam Member

read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling

Advice
A MyEpilepsyTeam Member asked a question 💭

I'm waiting on getting disability. Applied last November. I have a lawyer so hopefully my case will be heard anytime. Does anyone know of any program that can help me financially. I don't have any income. The only programs they have are for people with children. Or people who are pregnant.

A MyEpilepsyTeam Member

Thank you very much I will definitely look into all of this I contacted the epilepsy foundation they are going to help with medicine try to have a appointment to see a neurologist otherwise I have to… read more

Are You Willing To Do Whatever Is Necessary To Help New Members Feel Comfortable And Quickly Have A Team Of Many?
A MyEpilepsyTeam Member asked a question 💭

I ask this because the site owners and techs are not able to provide an additional search option to search for New Members. And there have been too many New Members over the years who have come once or a few times and gotten frustrated and left because they do not get the true benefit of being embraced by a large enough team to not only make them feel welcome but also be able to provide answers and often personal experience regarding any related to seizures (types, symptoms, auras, side… read more

A MyEpilepsyTeam Member

I always tell people about the wealth of information and access to personal experience to be found here. It’s true, and new resources are being added every day!

Are You Having Problems Knowing How To Do Things And Navigating Around On This Site?
A MyEpilepsyTeam Member asked a question 💭

If so, then here are some sources of details about how to navigate and perform many different actions on this site
Here are some tips that I got in response from the creators of this site -- when I asked if it was possible to put a "How to" index on the screen after logging into this site. It is not possible (due to the complexity of doing so and the cost to do so --both a major problem since this is a non-profit organization that created this site).

While they indicated that cannot make the… read more

A MyEpilepsyTeam Member

I still try & work this zoom out for a better time, & say
Hi yo a few more friends

Do Any Of You Feel That You Have Been Taken Advantage Of?
A MyEpilepsyTeam Member asked a question 💭

Lots of us have to stay under controll of others while some dont out of fear or need. Some of us refuse and go about on our own. Either way we all struggle either financially or body function or how we feel. How do all of you feel about your needs and has anyone ever known and taken advantage of you? If not have you ever fealt sheltered and how do you stay free even on your worst days.

A MyEpilepsyTeam Member

My older sister treats me like a little kid, I'm 64 and it drives me crazy. My daughter and her husband use to shop at our house when we were out. Than we went to get it to use it for a recipe it… read more

What Type Of Support Do You Feel Would Be The Most Beneficial To You At To His Moment In Dealing With Your Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I'm so curious as to what everyone's needs are. I want to see us all get the help, resources and support we need and deserve.

A MyEpilepsyTeam Member

PamelaMolyneaux,
I'm not sure what type of support.
Peggy Shore

How Can The Veterans Of This Site Do More To Help The Newer Members To Get Answers To Their Questions?
A MyEpilepsyTeam Member asked a question 💭

As I have discussed with some of you, I try to send a greeting and add all new members to my team to help to get answers for them. However, there are a lot more of you have personal experience with implants like VNS, RNS, etc. and various brain surgeries, versions of the Keto diet, use of other alternative treatments and anticonvulsants and the like that I do not personally have.

How can we improve things for them even while we consider the meetings and the likes for some of us?

The… read more

A MyEpilepsyTeam Member

Nonprofit creators, John Dufresne? Are you certain?

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