Do you remember how you heard about this site? Do you have a local support team (family, friends or other epileptics)? If yes, then how has joining the team here been additional better? What would you suggest to the keepers of the site to improve the experience for new people (based on your experience) to convince them to stay longer and give the site a chance?
I just ran across it
We're young and I know she loves me, but I just worry that she feels like I'm holding her back or something. It's scary to think about it
Also think about this. If she ;loves you and I know that you worry ( I have done the same) but it can across to her like you dont trust what she says and how she feels. That can cause issues. Talk to… read more
I want him to see what others go through caring for people with epilepsy. He is mad because I told him about what I wrote about him and how it helps to know you are not alone in the struggle in epilepsy. He won't even think about it. I am the one with the problem. Not him he says. My oldest son said I should be grateful. He said if I left my husband, I cannot stay at him. He would be me ina home right away. That hurts. I have been crying for a few days. My other son is a recovering alcoholic and… read more
The only in perso place I know that has support groups for the whole family ànd other families on how to handle living life ŵith epilepsy and one who has Epilepsy is at he Epilepsy Foundation. You can… read more
Please tell me that I am not the only one urging them to tell everyone with Epilepsy/Seizure Disorder about this amazing site.
It has changed my life to come here and make friends who know exactly what it is like to have a seizure. Don't you want everyone to also receive this gift?
I about this site from my Neurologist. I've never thought about asking the association to add it. I've thanked my neurologist numerous times for suggesting it. I'm on it daily. I've made online… read more
Epilepsy is 1 word but we all have it but each is different so we understand each other in one way or another but friends who is our friend some cut you dead some you haven't saw in years and family can and are the same me that's stressful and some family cannot cope with epilepsy so how do they think we cope when there's no surrport and understanding but if other way round I help and just be there so that's why all you epilepsy people are stronger and brave so we have to help and support each… read more
Yes Glen has kind words of love and wisdom. Inspiration too. 😀
I've felt alone for 26 years and I feel like I wasn't meant to be here I've had family trouble relationship trouble ect .my mom said she never wanted me my family disowned me and my fiance is cheating on me and lying to me about it I feel so alone no friends no family no nothing
I think that’s the normal response you get some people who don’t understand anything about epilepsy or seizures or the best one is you ok you must be ok and there is nothing wrong with you there is so… read more
If so, then answer this question. And ask me and other veterans of this site how we can help you in your response to this question that I have posted.
In the meantime, click on this link to get the help that you need on how to do things on this site.
https://myhealthteams.freshdesk.com/support/home
This link takes you to the page on this site that provides a lot of the answers:
https://myhealthteams.freshdesk.com/support/home
Both of my former shelter dogs Baron and Prince are extraordinarily kind. And hilarious!
Awwwwww
I think my husband needs the support of others like him that go through seeing a loved one go through the pain of epilepsy. If anyone knows one send it. I might be able to get him to look at it.
A good place to check out would the Epilepsy Foundation! I say that they have multiple support groups. Also they have things where he and you may go on something like a week end camping, go out one… read more
I had a breakthrough seizure Saturday night. When I woke up, prior to regaining my sense of self, I apparently Googled “help” over and over. I know I needed help. But I didn’t know how to get it.
Im looking for things that would help in that situation. When you need help and you’re scared because no one is around.
I’m thinking maybe an app? Something familiar that could be utilized in those first scary moments.
That’s the same problem I have. I’m thinking an app on your Lock Screen that plays music you choose to calm you down, or a loved one’s voice telling you it’s ok. Maybe it calls a seizure hotline so… read more