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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Have You Ever Been Accused Of Faking Epilepsy To Get Attention?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Not being believed is worse than a seizure. I hope your days are sunny and peaceful.

Driving
A MyEpilepsyTeam Member asked a question 💭

Do you guys drive?

Last of 325 replies sign up to view previous answers
A MyEpilepsyTeam Member

Losing the right or ability to drive is not only hard it just down right sucks! It is a means to independence. I haven’t driven in almost 9 years and I hate every minute. Having said that I look at… read more

Emotional After Seizure?
A MyEpilepsyTeam Member asked a question 💭

Does anyone feel really emotional or a change in their emotions after their seizure or for the next day or so?
I find I can feel quite down and sad, sometimes near crying or I cry a little. Not crying because I can't cope or that I'm upset about having a seizure, just more that I feel really down. In the past I've also felt a little angry or moody after a seizure as well.
Just wondering if this is normal and if anyone else has experienced this?
I have grand mal/tonic clonic seizures.

Thanks x

A MyEpilepsyTeam Member

OMG I am so thankful I have found this community.

Anyone Having Positive Results Microdosing?
A MyEpilepsyTeam Member asked a question 💭

I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...

A MyEpilepsyTeam Member

The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊

Lamictal
A MyEpilepsyTeam Member asked a question 💭

Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.

A MyEpilepsyTeam Member

I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name

How Long Have You Had Seizures?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Since 2012

Has Anyone Every Experienced A Vision/dream During A Seizure / Focal Awareness Seizures?
A MyEpilepsyTeam Member asked a question 💭

Last night, well I guess early this am I was awoken due to a dream that I have had before 1 other time, but this time I felt completely different. It felt as if my brain was rapidly firing vivid images still and like it was tremoring out of control. I have have had slight brain tremors before but nothing like I felt last night/this am. It was about 330am. It took about 15ins for calm to restore and I was not able to go back to sleep. More like I just laid there with my eyes closed… read more

A MyEpilepsyTeam Member

I've had seizures since the summer I began menstruating, and I'm now 51. The last 10 yrs have been particularly bad. I would have these 'anniversary' attacks around Christmas holidays, where they'd… read more

Hey Folks. Having Major Struggles After My Last Seizure. Anyone Else Deal With Depression And Anxiety Weeks After Their Seizure?
A MyEpilepsyTeam Member asked a question 💭

I recently had my third seizure at 29 years old. My first was a Febrile Seizure at age 5 or so. My second was around 22; I went to a music festival after barely sleeping, didn't eat, drank and smoked marijuana. Third was after a long night of drinking and poor sleep. Smoked marijuana and instantly went into one. I was diagnosed 2 weeks ago with IGE. I haven't started my Keppra yet as I've already been dealing with anxiety and depression for the last year or so. I haven't been able to have a… read more

A MyEpilepsyTeam Member

Love your honesty thanks for it

What Are My Options?
A MyEpilepsyTeam Member asked a question 💭

I submitted a reasonable accommodation request on 10/18/22 asking that my job give me 12 hours off of work, specifically during the hours of 7pm to 7am, due to the fact that I must wake up at 6am to get my children ready for school. Also to see to it that I may get enough sleep, because the recommended amount of sleep for someone with my disability is 8-10 hours of continuous sleep per night. My boss agreed to accommodate my request for one week only: 10/31-11/05/22, even though I… read more

A MyEpilepsyTeam Member

Easier said than done. But you deserve better than them!!!!

Question About Dilantin
A MyEpilepsyTeam Member asked a question 💭

A couple of weeks ago, my doctor increased one of my medicines - Dilantin, and my body did not agree with that. This ended up making my body toxic. I was in in the hospital from 2/5 - 2/7 for my Dilantin level was so high which also made me dehydrated. I am doing better now, but not myself yet. My doctor is eager for me to get back on Dilantin, but I would rather wait at least a few more days for I think my level is still not as it should be.

I am still having pressure feeling on my chest at… read more

A MyEpilepsyTeam Member

My neurologist took me off Dilantin years ago. He said a certain side effect would cause cancer, liver and kidney failure. I'm currently taking lamotrigine which is the generic version of Lamictalread more