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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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What Types Of Anticonvulsants Were You On When You Were Pregnant?
A MyEpilepsyTeam Member asked a question 💭

Were there any side effects relating to birth defects with that specific medication?
My husband and I are trying to get pregnant within the next couple years and it's clear that I need to take an anticonvulsant. I would rather take a medication that has side effects for me than for my future child.

A MyEpilepsyTeam Member

My daughter is perfectly healthy & I had no side effects during my pregnancy either. My daughter was born full term with no health problems & never even had febrile seizures when she's had things like… read more

Looking For A Advice
A MyEpilepsyTeam Member asked a question 💭

My daughters has myoclonic juvenil epilepsy, last year she had a total of 3 seizures , on February will be the junior trip to bush gardens, she should go? She enjoy the roller coasters, we have gone to the parks and we have never had any problem, but I don't know if it's fine to let her go, because I will not be there with her, she is very excited about to go to the trip with her friends.

A MyEpilepsyTeam Member

I would let her go. I would just make sure the people she's going with are aware of her condition & know what to do if she has an event. I had epilepsy since I was 10 & had brain surgery to remove a… read more

What If You Have Undiagnosed Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I have grand mal seizures Myoclonic seizures but my neurologist and I have gone through every test in the book to find where the seizures misfire in my brain. We can not find it, no where? Any ideas?

A MyEpilepsyTeam Member

I have had to many eeg’s in my life. I have had at least ten where I was stuck in a hospital. Once I agreed to stay in the hospital 🏥 for one. The last one is when I had all the electrodes glued to… read more

Friends
A MyEpilepsyTeam Member asked a question 💭

Epilepsy is 1 word but we all have it but each is different so we understand each other in one way or another but friends who is our friend some cut you dead some you haven't saw in years and family can and are the same me that's stressful and some family cannot cope with epilepsy so how do they think we cope when there's no surrport and understanding but if other way round I help and just be there so that's why all you epilepsy people are stronger and brave so we have to help and support each… read more

A MyEpilepsyTeam Member

Oh my Lord and I thought I had it rough not knowing my parents. I'm praying for you. Do that which the Lord wants you to do. He is the light that guides me. Even when others said I'm not able he told… read more

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Does Anyone Have Any Seizures That Present Similar To A Panick Attack? What About Before An Episode/after One?
A MyEpilepsyTeam Member asked a question 💭

It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...

A MyEpilepsyTeam Member

After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more

How Long Have U Had Ur Disorder
A MyEpilepsyTeam Member asked a question 💭

if anyone is free to chat i am here

A MyEpilepsyTeam Member

I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age

When You Were Told That Medication To Assist You, Did You Choose Surgery Or Alternative Solutions? How Well Did It Work For You?
A MyEpilepsyTeam Member asked a question 💭

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more

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Have You Ever Been Accused Of Faking Epilepsy To Get Attention?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Not being believed is worse than a seizure. I hope your days are sunny and peaceful.