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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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How Is Thi Site Not Like That On Facebook?
A MyEpilepsyTeam Member asked a question 💭

Posts on Facebook claim herbs cured her of epilepsy Not even a member then profile also has posts to other sites as cure for herpes, infection. Is there any way to get this off or warn others? Site says it's private w/16 members. Is there an alternative in the U.S. to get people real info or not. If Administration of MyEpilepsy site does not respond then I ll tell others must wipe it out.

A MyEpilepsyTeam Member

I do know berries help with seizures especially the dark ones not saying stop taking meds though

Medication Side Effect? Further Complications?
A MyEpilepsyTeam Member asked a question 💭

I have focal eppilepsy. My speech is very impaired now. Vision is now double. Balance is impaired. Meds ia now toplep 300mg a day and epitec 200mg a day split in half morning and night.

Over the last 3 weeks my speech and vision as well as balance has started going. My fits have increased significantly. I am suffering feom chest pain as well. Muscular i canntouch. This I cant.

The neuro has kept up with the diary has to be submitted in a few weeks.

Please sgare your expieriences with me. Is… read more

A MyEpilepsyTeam Member

I hear you @A MyEpilepsyTeam Member. I get side-effects from my medication too. I am on 4 different AEDs(one of them is in 2 strengths)which makes it worse. They tend to say ‘the more AEDs you are… read more

Do You Find Seizures Are Linked To Your Emotions?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

My greatest problem is when I type my thoughts are to fast for my typing and I get confused and have to start all over again. If there was a easier way. If I could call each an everyone of you just… read more

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

Covid Shots
A MyEpilepsyTeam Member asked a question 💭

Hey Guys,
I haven't been on for a while and I'm sure it's already been asked but....
How many of you have had the Covid-19 shots (and which one and why).
Also, my doctor wants me to get Pfizer along with my partner,
but by the time he gets it his work would have started and he won't because he hasn't had the shot.
Again, we can have the Astra in a few days and everything would be alright.
I'm very confused,

A MyEpilepsyTeam Member

I am alright I had the Oxford Astra zenica an I am perfectly alright they are saying for the booster we might get the one the doctors are asking you to have they have studied having them mixed first… read more

Does Anybody Have Trouble Remembering Simple Things.
A MyEpilepsyTeam Member asked a question 💭

For myself, I had college degree. Now after my surgery, I have trouble remembering things. Sometimes it might be from just yesterday, week, month or year. Now I have to carry around pad & pen just so I remember appt that I just might forget.

A MyEpilepsyTeam Member

Yes . All the time. I’ll go into a room to get something. Once I arrive to the room , I’m stand there itching my head, trying to remember why or what I need to get .

How Long Have U Had Ur Disorder
A MyEpilepsyTeam Member asked a question 💭

if anyone is free to chat i am here

A MyEpilepsyTeam Member

I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age

A MyEpilepsyTeam Member asked a question 💭

If/ I may ask, should you not be comfortable answering by all means. How has everyone felt after their diagnoses? Was it hard to accept?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Sorry to hear that you have had to endure all of that! I was blessed that back in 1980, the focus was on my heart (because my older brother had to have open heart surgeryread more

Any Advice?
A MyEpilepsyTeam Member asked a question 💭

I asked a question awhile back, but had a hard time getting back in and then life just swept away. I have a 20 year old son who started having seizures at 19. He’s scared. So am I. We haven’t gotten a lot of Information regarding why this is happening. He hasn’t been able to pin down. Any triggers or anything. But after he has one, he gets violently sick and throws up for a long bit. Is this normal? He says that his body is sore for the next week because of the seizure he has had… read more

A MyEpilepsyTeam Member

If he plays video games it could be that or it could be he has started taking them some start taking them as adults

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?







Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.