@A MyEpilepsyTeam Member
I chose to have my VNS completely removed when it didn’t help me. I could have just had it turned off too.
I saw my Epileptologist today ( Monday ) . We were going over some other options to help improve my seizures. Maybe even stop them . She is planning to up the does of a couple meds and brought up the option of doing the DBS . She gave my wife and I a information packet on it . We will read through and make up our minds ( well I will decide that ) if I do it or not . I have 4 months until I have to see her again.
@A MyEpilepsyTeam Member , thank you
Where can i get a replacement magnet
Talk to your Dr. About the replacement for your VNS magnet
I got my VNS in 2008. My doctor recently recommended I get the newer VNS version since it does a lot more than the one I have now. Has anyone had the older version and recently go the newer one? How has it worked for you? Better, same or nothing changed?
Vagus nerve stimulation is a device implanted in your chest by your heart to prevents seizures by sending regular, mild pulses of electrical energy to the brain by the vagus nerve. By a wire going up… read more
I just got my vagus nerve stimulator operation. Can anyone tell me if it works for them/side effects/what I can expect?
I'm now 4 weeks post op from VNS...had it turned on 2 weeks ago. So far no problems. I had laryngitis for 2 weeks, but I honestly think it was from surgical swelling. It's better now. VNS was turned… read more
My son was on Vimpat for 6 years. I seen no seizures then he started having falls. He got a pacemaker and dr removed the Vimpat and put him on Keppra. Then added zonisamide then added Epidiolex and still has falls from seizures. He don’t shake but still has them.
Hoping for a cure for him.
I have what Dyscognitive Refractory Epilepsy when diagnosed by Dr. Veedu. I had a "craniotomy" back in 2018 and have had no seizures since then ! Great feeling too ! 💜
So, I've been seeing a regular neurologist for about 3 years now (partial seizures). I had a seizure last month and after that one my neurologist finally referred me to a seizure specialist, my appointment scheduled in October. It's going to be a full day event, I'm going to have a EEG done in the morning and I'll meet back with the doctor later on.
Patricia, yes!
I have Juvenile Myoclonic Epilepsy and was wondering if VNS is an option? If so has this helped you?