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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Extratemporal cortical resection"

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If You Had Resection Surgery Can You Answer These Please?
A MyEpilepsyTeam Member asked a question 💭

I got the majority of the "important" questions answered that i asked my docs. I just forgot to ask, how long it takes for the chunk of skull to heal that they cut? Do they use screws to hold it together? Can you feel the fact your skull has been cut or that there are screws(if there is screws)? If anyone has has a resection, do you know a rough estimate what the answers would be? I know i can always ask the day of surgery for more exact answers, i just kinda want to go into knowing ahead of… read more

A MyEpilepsyTeam Member

Research on a reputable site like Mayo, Cleveland, John's Hopkins clinics. Put your questions on Google and choose what those sites offer. This will help you ask better questions as well
Also Gigi… read more

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Has Anyone Had Success With Eastern Medicine Or Alternative Therapies?
A MyEpilepsyTeam Member asked a question 💭

I'm on a mass amount of medicine. I take my pills. I also take epidiolex which is basically concentrated CBD. I have a VNS which I've had since June 2017. I tell my doctor about every seizure and sometimes medicine gets upped but I have so many different types *grand-mal, abnormal absence, atonic. I'm just looking for something else, because I'm having them more frequently. I hate missing work. I need to provide for my family. Any ideas are appreciated.

A MyEpilepsyTeam Member

I practice yoga and meditation alongside taking CBD oils and teas, B6 B12, vit D, vit k, Zinc suppliments and liquid metal tonics. I also take Ashwaghnada and adrenal cortisol suppliments to help… read more

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Has Anyone Had Surgery For Cortical Dysplasia ? And What Were Your Results ?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Hi Eric Fuentes,
Look up on Google and type focal cortical dysplasia. Your answer is right there!

Anyone Know The Difference Between Focal Cortical Dysplasia TypeIII & Focal Cortical Dysfunction?
A MyEpilepsyTeam Member asked a question 💭

I’ve been diagnosed w/ ‘focal cortical dysplasia’ of my left temporal+parietal lobes & ‘focal cortical dysfunction’ of my right+temporal parietal lobes. This = intractable complex partial focal aware & unaware seizures alternating between hemispheres or/& activating both sides simultaneously
I’ve tried researching the difference between cortical dysplasia & cortical dysfunction myself, but I find the terms often used interchangeably
I have difficulty w/ higher executive functioning, so would… read more

A MyEpilepsyTeam Member

Completely agree SusieQ! Glad you have one, it helps SO much
I’m currently looking for a new primary care dr., preferably in Cleveland area
I was assigned one before I left my last hospitalization;… read more

Brain Health Neuroscreening
A MyEpilepsyTeam Member asked a question 💭

Has anyone here had that done? If so was it effective?

A MyEpilepsyTeam Member

I know they have places in NSW,Victoria, and Queensland.

Has Anyone Ever Experienced Fluid Retention While Taking Keppra?
A MyEpilepsyTeam Member asked a question 💭

I've been taking Keppra for almost 8 years now and off and on I've experienced unsightly fluid retention in the legs and stomach. I've never thought to associate the two previously but in the warmer months it gets pretty bad.

I was just wondering if anyone else has experienced something similar while taking Keppra or perhaps I just have a predisposition to fluid retention....

If you have experienced it how have you managed it?

A MyEpilepsyTeam Member

My son was put on keppra and he gained 20 kilos in one year. His stomach has remained bloated even though he’s off keppra. It was devastating for him and compromised his mobility

Brain Surgery Experience
A MyEpilepsyTeam Member asked a question 💭

I had brain surgery in November to remove cortical dysplasia in my right frontal lobe. It was an awake craniotomy. Luckily I am now seizure free 4 months, before had seizures every night. If anyone has any questions or advice I’d love to be a resource for you!

A MyEpilepsyTeam Member

Hi. Congratulations on the success of the surgery. How are you doing now? I was told by my Neurologist that if this next set of meds doesn't adjust to me well, along with the Neurosceience Physical… read more

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Has Anyone Else Been Diagnosed W/ Mild Diffuse Encephalopathy? What Is It?
A MyEpilepsyTeam Member asked a question 💭

I haven’t seen my neurologist since getting this diagnosis added to my ever increasing list of epilepsy complications. Showed up after my recent inpatient video EEG (6 of them) 4 in ICU. I’m 51. Am I now having dementia??!?!

A MyEpilepsyTeam Member

I do not know

Feel The Screws/plates?
A MyEpilepsyTeam Member asked a question 💭

i dont know if im explaining this right, but now that my head is feeling a little less numb from surgery, i feel like i can feel the plate and/or screws in my bone. (Without using my fingers) like it feels "cold" and hurts bad in one tiny area even after taking Tylenol. It feels the way metal tastes, I guess. or whatever the injection hospitals give you when they say " you might taste a metallic tasted in the back of your mouth"..... it feels the way that tastes lol and cold. has anyone… read more

A MyEpilepsyTeam Member

Gig with the new year
How are you feeling now after your operation last November?
I pray that all is well!
Have a blessed day

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Seizure Apps
A MyEpilepsyTeam Member asked a question 💭

I’m looking for a seizure app that works with the Apple Watch to help monitor my son’s seizures and alert me when he is having one or if there is a camera that is affordable that can monitor his seizures at night and alert me when he is having one. Any suggestions?

A MyEpilepsyTeam Member

The seize alert app is pretty effective. However it does drain the charge on the watch pretty fast. So 8 hours is the max so keeping track of the battery is key. My son had a seizure and the watch was… read more