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Embrace Or Epilert Watch? I Wanted To Know If One Is Better Than The Other. If Any Would Work For Secondary Generalized Seizures.
A MyEpilepsyTeam Member asked a question 💭

Will epilepsy watches like embrace and epilert work for secondary generalized seizures

A MyEpilepsyTeam Member

I do know someone had wristband on and they were just tying their shoelaces and the wristband told them they were having a seizure. It sounds like any wristband can't tell the difference between… read more

What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Watches
A MyEpilepsyTeam Member asked a question 💭

Does anyone manufacture a watch to alert to seizures, heart problems, etc.
I only have two skinny wrists, so I don't have a lot of room for multiple watches.😁

A MyEpilepsyTeam Member

Robert5
My phone doesn't automatically call 911. It sent a picture to certain contacts. When I had a heart attack & my daughter called 911 from Michigan I tried to convince EMTs all I needed was a… read more

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

Is There A Connection Between Shingles And Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I just wondered if Epilepsy could have increased my chances of getting Shingles seeing that they are both nervous system / brain related. I noticed a burny itchy spot in my cheek a few days ago. Its getting bigger. The rest of my right side of my face started itching too. And the back of my neck and down my back. So walked into the pharmacy today after church to get an antihistamine for this strange "allergy" I have. And the pharmacist told me it's not an allergy. IT'S SHINGLES! No wonder I've… read more

A MyEpilepsyTeam Member

I am having shingles on my right side right now. I also had them when I was a teenager. I've had three seizures since I've been aware of the shingles on my back..I feel really out of it and hurting… read more

Do You Guys Drive With Having This Condition?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Absolutely not. It's bad enough I could crash seizing, I can't imagine hurting a family member, or even a stranger. But I understand the urge. I understand just wanting to be independent. I'm tempted… read more

Side Effects On Certain Food With Your Medicines
A MyEpilepsyTeam Member asked a question 💭

Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?

A MyEpilepsyTeam Member

I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate

How Do I Remember Things From Class?
A MyEpilepsyTeam Member asked a question 💭

So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more

A MyEpilepsyTeam Member

read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling

Has Any One Lost Weight On Topramate I've Been Put On This And It's A Side Effect
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I lost a lot of weight I did look awfully thin and didn’t want to eat much I am getting myself to eat more and not feeling as low and anxious as I was now which is good. I am now 9st/126lb which I… read more