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I live with epilepsy day after day and my dream is to be a video editor but there’s been another dream stopping from happening because of all these meds I’m going to attempt to try it anyways though by training myself for the Navy. I hope my body can take this dream. This is important.
You can do anything please don't let this epilepsy ruin your life ... a gave up my jibs because of ot a regert it a was going to collapse once a week to learn my lifted a had 2 jobs 1 in a care… read more
Since 2012
I take Levetiracetam and tomapax in the morning and at 6pm. I have my alarm is set for both times but sometimes I don't here the one in the morning or I take it and I'll forget that I did rather it's in the morning or afternoon. What I am asking is how do you keep track or what are you using to make sure you didn't forget?
I now have a Nurse who is supposed to come in and set them up. I was running low on some that needed new Prescription Refills. Now I have everything I need. Am very capable of setting up meds. I have… read more
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
I had a neurologist ask me to stop drinking Coke (caffeinated), for a week or so to see what effect it had
I switched to 7-up
Seizures? No effect; but I did drop a few pounds. LOL (BTW I didn't need… read more
When you are asked to take medication in the Morning and Night when Label on the box, would you follow it to 12 Hours between taking it, or what would you think of Various time in the Morning and A Various time at Night? If you didn't have a set 12 Hour Period would you think people would have more Seizures, Because I use to work early at 6am up to Last February, but would take my Medication at 9pm for Night , so this would be over a 12 Hour Period.
Hello! I could not find any answers to this topic. Do you all find that you generally need more sleep than others? I know everyone is different, but I find that I usually need 8+hours of sleep daily. I am very diligent about getting enough sleep as that is one of my main triggers. On the weekends, I can easily sleep for 9+ hours. Is anyone else like this?
I would say yes, I’m the same way in that I need about 8 hours on a regular schedule in order to function normally, and without it I’ve been more prone to seizures. But I purposely plan and keep to… read more
I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.
Hi my son 7 has occipital lobe focal epilepsy he gets these headaches so days just 1 some days up to 4 could they be a seizure also only now and again his eye vision go black for seconds can anyone help also Tuesday my 5 year old girl was asleep next to me seized for first time 2 mins 15 mins recovering docs say as first seizure they wont do anything even though my boy 7 and their dad has epilepsy
i think the family has seizures (also known as genetic seizures). my family has genetic celiac disease (attack the weakest link if i eat grains). it is stupid but the drs wont do anything to your girl… read more